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Mary Fasang's Fundraising Page |
Page Creator: Mary Fasang
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Our Angel, Jade
The Angelman Syndrome Foundation seeks to improve the lives of individuals with Angelman Syndrome (AS), and their families. Through education, information exchange and support for research individuals, families, healthcare and education professionals benefit from a greater understanding of AS and improved therapies and treatment. Our ultimate goal is prevention and cure.
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Fundraising Target: $5,000.00
Total Raised So Far: $1,940.00
 My Personal Message Thank you for taking the time to visit my Angelman Syndrome Foundation fundraising page. This year, I will be running the Athens Classic Marathon in Athens, Greece, on October 31, 2010, to raise money for the Angelman Syndrome Foundation. This year's Athens Marathon will mark the 2,500th anniversary of the marathon. According to Greek legend, Pheidippides, a Greek soldier-runner, ran 26 miles from the town of Marathon to Athens in 490 BC to announce that the Persians had been defeated in the Battle of Marathon. It is said that he ran the entire distance without stopping and burst into the assembly, exclaiming 'We won.' before collapsing and dying. In 1898, the historic route was run again as the first marathon of the modern Olympic era. My 9 year old niece, Jade, has Angelman Syndrome. She is non-verbal but communicates using the American Sign Language (ASL) she is learning. She is a very active child and loves playing at the park and going on rides at the amusement park. She enjoys going to school, doing homework and helping her Grandma with chores around the house. Jade has brought so much joy into our lives. Thank you very much for your love and support. About The Angelman Syndrome Foundation The Angelman Syndrome Foundation is 100% funded by the generosity of donors, members, and volunteers. The Foundation serves as a focal point for advances in treatments and programs while reaching out to new populations through broader information and educational services. This means that those undiagnosed and misdiagnosed families can more easily find the answers they deserve, and the families who are seeking understanding and community can find those vital connections. 100% of your donations will go directly to the Angelman Syndrome Foundation. The Angelman Syndrome Foundation was recently awarded the prestigious 4-Star Rating for Fiscal Responsibility by Charity Navigator. This shows that donations to the ASF are being used and making an impact everyday! If you'd like to follow me on my journey to train for this marathon, please visit my blog, The Journey of a Running Green Girl.
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