About Us
The Angelman Syndrome Foundation's mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties.
Research
The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, the ASF has funded 66 research grants totaling over $4.7 million. The ASF has awarded a majority of these funds ($4.5 million) beginning in 2005.
Education & Information
ASF is a national 501(c)(3) organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. The ASF sponsors a biennial conference which gives you the opportunity to hear the latest research results, therapeutic techniques, educational strategies, long-term planning and financial planning information. The conference also offers many networking opportunities to talk to familiies that are dealing with the same issues you might be having while caring for an individual with Angelman Syndrome.
Support
The ASF has recently started a new mentorship program. Newly diagnosed families will automatically (unless they opt out) be contacted by a family mentor in their area. This mentor will be there to support the newly diagnosed families as they have questions regarding Angelman Syndrome. The ASF Resource Specialist will also call the newly diagnosed family to talk about local and state resources.
Local contacts are friends and families of ASF who have volunteered their time to answer questions. Click here to view a list of local contacts by state. If you are interested in becoming a local contact and are a member of ASF, please email your contact information to info@angelman.org.
Regional Representatives are also available to answer questions. Regional representatives provide networking opportunities within the region; such as picnics and workshops.
Professional References are geneticist, neurologists, therapists and teachers familiar with Angelman Syndrome. These volunteers were referred to us by AS families and have agreed to be a reference to other families who may need their expertise. If you have a professional reference you would like to recommend, please email the ASF Office with their contact information at info@angelman.org.
Newsletters
The ASF publishes a monthly newsletter, Voices of Angels, which alerts members to upcoming meetings and events, provides helpful insights from AS families and friends, and informs readers of any new research and medical developments that could better the lives of AS individuals and their families.
Click here to become a member of the Foundation. A membership application can also be obtained through the ASF Office at 800-432-6435 or email info@angelman.org.
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