The Angelman Syndrome Foundation is committed to protecting your privacy when you visit our website. Information we collect is used to improve our site, provide you a better experience, and respond to your questions and requests.

Information Collection

We collect two types of information on our website:

1. Web server traffic information: This information is used to determine the number of visitors to our site, length of stay and sources of traffic. We collect aggregate data – or total of those visiting from a domain – not information identifying individual users. We use this information to help improve our site and service to you.
2. Personal information provided by you: We collect email addresses and other personal information only when you provide it to us. If you fill-out a form or survey, request information or make a donation, we collect your name, address, city, state, zip code, telephone number and email address.

Use of Personal Information

The Angelman Syndrome Foundation collects information from different points on our website. We do NOT sell, trade or rent our website visitor’s personal information to others. If you willingly provide us your personal information, the Angelman Syndrome Foundation may use it in the following ways:

1. Donations: When you make an online donation to us you are directly placed on our mailing list to receive publications and other mailings either via regular mail or email. As a donor, you may request to have your name removed from these mailing lists.
2. Email information requests and questions: When we respond to your email request or questions, we collect your information and directly place you on our mailing list to receive publications and other mailings via regular mail or email. To opt-out and remove your name from future emails or mailings, just follow the procedure outlined below.

Your Consent

By using the Angelman Syndrome Foundation’s website, you consent to the collection and use of the information described above.


We respect your privacy and we do not require that you provide any information to us in order to view our site. We also recognize that you may wish to limit the ways in which we contact you. Simply send an email to with the following information:

1. To remove your name from mailing lists, please provide your full name, mailing address, and/or your email address and a sentence requesting removal. Please use “Remove From Mailing List” in the subject line of your email.
2. Correcting/Updating Personal Information: If your personally identifiable information changes (such as your email address or zip code), or if you no longer desire to access our Website, we will endeavor to provide a way to correct, update or remove the personal data you have provided to us. This can be done by using an opt out message in an email, or by emailing us at We will respond to your request within 3-7 business days.


This Website incorporates reasonable safeguards to protect the security, integrity, completeness, accuracy and privacy of the personal information that we may collect and we have put into place reasonable precautions to protect such information from loss, misuse and alteration. At the Angelman Syndrome Foundation, your personal information is kept confidential and stored in a secure environment, and access to your information is restricted only to authorized staff with a legitimate and specific business purpose. is owned and maintained by the Angelman Syndrome Foundation. If you have any questions about your privacy, the use of information collected, or the security of our website, send an email to the website manager at Our security policies are reviewed periodically and revised as required.

Terms of Use

This website, located at (“the Website”), is an informational service offered by the Angelman Syndrome Foundation (ASF). Public pages are viewable at no charge with the express condition that the users of the Website agree to be bound by the terms and conditions set forth in this user agreement (“User Agreement”). ASF reserves the right to change the terms and conditions of this User Agreement at any time, without notice to you, and you must consult the most recent version of this User Agreement each time you view the Website. Use of this Website constitutes your acceptance of all of the following terms and conditions, in their current form or as modified.


The Website is a general audience Website. This Website is intended solely for users who are thirteen (13) years of age or older and any access to the Website by anyone under 13 is unauthorized, unlicensed and in violation of this User Agreement. By viewing this Website, you represent and warrant that you are 13 or older and that you agree to and to abide by all of the terms and conditions of this User Agreement. We do not currently collect any personal information from children under the age of thirteen on the Website. If in the future, we collect personally identifiable information from children, it will do so in compliance with the Children’s Online Privacy Protection Act of 1998 (15 U.S.C. 6501 et seq.) including, without limitation, obtaining necessary parental consent.

The Internet offers children wonderful educational and entertainment resources. Your guidance and involvement are essential to help ensure that children have a safe and rewarding online experience. We encourage you to visit the Direct Marketing Association’s Web Website ( and explore the Get CyberSavvy! Program as well as the GetNetWise Website ( to learn more about parental control tools.

Modification of These Terms of Use reserves the right to change the terms, conditions, and notices under which the website is offered.

Medical Disclaimer

You acknowledge that the information on the Website is provided “as is” for general information only. Regardless of its source, the information and materials on the Website should not be considered medical advice, should not be used for self-diagnosis, and should not be relied upon as a substitute for regular consultations with qualified health professionals who are familiar with your individual medical history and needs. ASF does not recommend, endorse or make any warranties or representations of any kind with regard to the accuracy, completeness, timeliness or efficacy of any of the procedures, programs, materials, products, or other information provided on the Website.

Disclaimer of Warranty

ASF makes no warranties of any kind regarding this Website, including but not limited to any warranty of accuracy, completeness, currency, reliability, merchantability or fitness for a particular purpose, or any warranty that these pages, or the server that makes them available, are free of viruses or other harmful elements, and such warranties are expressly disclaimed. ASF assumes no responsibility or liability for the timeliness, deletion, or failure to provide any information.

Limitation of Liability
You agree that you will indemnify and hold harmless ASF and its affiliates, officers, directors, employees, and volunteers from all claims arising out of or related to your access or use of, or your inability to access or use, this Website or the information contained in this Website or other websites to which it is linked. This includes, but is not limited to, information or materials viewed or downloaded from this Website or another website to which it is linked that appear to you or are construed by you to be obscene, offensive, defamatory, or that infringe upon your intellectual property rights. In no event will ASF or the contributors of information to this Website be liable to you or anyone else for any decision made or action taken by you in reliance on such information or for any consequential, special or similar damages, even if you have been advised of the possibility of such damages.

External Websites

The website contains links to other websites which are not under the control of ASF. In general, any website which has an address (or URL) which does not contain “” is such a website. is not responsible for the contents of any Linked Site, including without limitation any link contained in a Linked Site, or any changes or updates to a Linked Site. is not responsible for webcasting or any other form of transmission received from any Linked Site. is providing these links to you only as a convenience, and the inclusion of any link does not imply endorsement by of the site or any association with its operators.

Hyperlinks from Third Party Websites

ASF encourages and permits text links to content on the Website provided: (a) any text-only link must clearly be marked “Angelman Syndrome Foundation;” (b) the appearance, position and other aspects of either the link or the website providing the link (“Host Website”) may not be such as to damage or dilute the goodwill associated with ASF’s name and trademarks; (c) the appearance, position and other aspects of either the link or the Host Website may not create the false appearance that an entity other than ASF is associated with or sponsored by ASF; (d) the link, when activated by a user, must display this Website full-screen and not with a frame; and (e) ASF reserves the right to revoke its consent to the link at any time in its sole discretion by amending this User Agreement and/or providing notice to the Host Website to remove the link.

ASF is not responsible for the information or materials contained on any Host Website. Links to this Website are provided for convenience of reference only and are not intended as an endorsement by ASF of the organization or individual operating the Host Website or a warranty of any type regarding the Host Website or the information on the Host Website.

Usage of Content

Unless otherwise indicated, all information contained on this Website, such as text, graphics, logos, button icons, images, audio clips is copyrighted by and proprietary to the Angelman Syndrome Foundation or its licensors and may not be copied, reproduced, transmitted, displayed, performed, distributed, sublicensed, altered, stored for subsequent use or otherwise used in whole or in part in any manner without ASF’s or the licensor’s prior written consent, except that the user may make such temporary copies in a single computer’s RAM and hard drive cache as are necessary to browse the website. The user may also make a single copy of the content displayed on any page of the website to be used by the user for personal and noncommercial uses which do not harm the reputation of the ASF, provided that the user does not remove any trademarks, copyright and any other notice contained in such content. User may not use membership lists, local contact lists, regional representative lists, professional reference lists, or any other lists or directories for any other purpose other than to obtain a direct personal contact with said parties on these lists. Lists and directories may not be used for solicitation, recruitment or any other purposes other than direct personal contact to obtain additional information about Angelman Syndrome. You also warrant to that you will not use the website for any purpose that is unlawful or prohibited by these terms, conditions, and notices. You may not obtain or attempt to obtain any materials or information through any means not intentionally made available or provided for through the website.


This Website (excluding linked sites) is controlled by ASF which is headquartered in the State of Illinois, United States of America. It can be accessed from all 50 states, as well as from other countries around the world. As each of these places has laws that may differ from those of Illinois, by accessing this Website both you and ASF agree that the statutes and laws of the State of Illinois, without regard to conflicts of laws principles thereof, will apply to all matters arising from or relating to use of this Website. You and the Angelman Syndrome Foundation also agree and hereby submit to the exclusive personal jurisdiction and venue of the state and federal courts located in and for DuPage County, Illinois with respect to such matters. ASF makes no representation that materials on the Website are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this Website from other locations do so on their own initiative and are responsible for compliance with local laws.


By using this Website, you signify your agreement to the terms of our privacy policy. We may amend this privacy policy at any time. If we make a material change to the way in which we collect, use, and/or share your personal information, we will post a notice on our website and / or send an email to users who have provided an email address. We will assume that you have given your permission for your information to be used under the terms of the new privacy policy, if you do not respond to our email within thirty days or continue to use the Website thirty days after a notice is posted. Please note that you should always update your personal information to provide us with a current email address.

Copyright and Trademark Notices

All contents of the website are copyrighted. All rights reserved.


The names of actual companies and products mentioned herein may be the trademarks of their respective owners.


We accept Visa, MasterCard, Discover, and American Express.