By partnering with leading medical and research institutions across the country, the ASF founded the Angelman Syndrome Clinics to provide individuals with AS, from birth through adulthood, the comprehensive medical care they need throughout their lifetime.
Each Angelman Syndrome Clinic is completely comprehensive yet has its own unique capabilities that leverage the expertise and specialized care available from each partnering organization. At the clinics, individuals have access to a variety of individuals all specializing in AS:
|• Clinical geneticist||• Physical/occupational therapist|
|• Neurologist||• Genetic counselor|
|• Psychiatrist||• Social worker|
|• Psychologist||• Nutritionist|
|• Speech language pathologist|
The Angelman Syndrome Clinics also provide a foundation to support future clinical trials by having established sites with AS experts and patients in place to conduct those trials when they become available.
In 2014, ASF committed more than $1.5 million to establish 17 clinics across the country during the next few years. The ASF has strategically identified locations that are within a 4-hour driving distance for more than 85% of the AS population in the U.S.—meaning a majority of families (>85%) in the U.S. will not have to travel more than four hours to access their nearest clinic, which is a primary goal of the ASF’s in making the clinics as accessible as possible. Each clinic will receive a three-year funding commitment of $50,000 the first year, $30,000 the second year, and $10,000 the third year, to establish the clinics and support them until they are self-sustaining.
The ASF has requested proposals to establish the next clinics in San Diego and Houston, with Chicago to follow. In alphabetical order, future target cities include Atlanta, Cleveland, Dallas, Denver, Jacksonville, New York, Philadelphia, Salt Lake City, San Francisco, Seattle and St. Louis.