News Room

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Angelman Syndrome Foundation's News Room is an aggregation of several sources. We will post exciting announcements pertaining to ASF in addition to news about Angelman syndrome from within our community and from external media sources. See a story you think we should share? Send an email to with the information. Thank you!

Celebrate Rare Disease Day

Approximately 30 million individuals in the United States are affected by a rare disorder or disease. On the last day of February every year, hundreds of patient organizations from more than 80 countries and regions worldwide conduct awareness-raising activities to celebrate Rare Disease Day. 

Hope for Thousands: Angelman Syndrome Research Makes Progress as Community Celebrates International Angelman Day

The Angelman Syndrome Foundation (ASF) joins the international Angelman syndrome community in celebrating International Angelman Day on Sunday, Feb. 15 as ASF-funded research continues to make headway in identifying potential treatments for Angelman syndrome. 

Alex & Ani Jewelry Fundraiser Supports AS Community

15% of ALL SALES will be donated to ASF

Research Investigates Health Issues in Adults with Angelman Syndrome

Paper published in American Journal of Medical Genetics shines light on health issues experienced by adults with Angelman syndrome

The Weisenfeld Family talks with CNN about their child with AS.

The Weisenfeld family spoke with CNN about their journey with Johanna, their 10-year-old daughter diagnosed with AS. A truly inspiring story to which almost all families can relate!

See the full story on