We are celebrating an exciting development for the Angelman Syndrome Foundation as part of our 20th anniversary year: the launch of our new website! For the past several months, the ASF team has been working diligently to develop a new, more robust website to serve as an even more comprehensive resource for the Angelman syndrome community.
We encourage you to explore the new site and to share this exciting news with your friends, family and colleagues.
In addition to advancing awareness and treatment of Angelman syndrome through education, information and research, a large part of the Angelman Syndrome Foundation's mission is to provide individualized, one-on-one support for individuals with Angelman syndrome and their families. Our new website is a direct reflection of this mission as we strive to provide greater support and even more resources for the Angelman syndrome community-and others-to utilize. We'd like to share a few highlights of the new website with you:
Overall improved design and functionality
As part of our 20th anniversary year, we have already unveiled the new look of our brand with a new logo and supporting materials, and the website is the capstone of our brand's evolution. We are now moving from being a member-based organization to extending the benefits of membership to everyone who reaches out to the Angelman Syndrome Foundation. As such, a login is no longer required to access the resources on the new website.
Broader social media integration
The website integrates easily with your social media channels-including Facebook, Twitter and YouTube-and gives you expanded ability to share, bookmark, "Like", "Tweet", and email any page on the website to your friends, family and colleagues.
Fully-customizable personal fundraising pages
Personal fundraising pages have a new look and user interface that is easier to navigate and manipulate, allowing you to personalize your page with photos, videos and text. These pages also integrate with your social media channels, and allow you to set-up automatic updates to be sent to your social media outlets when donations are received-helping you spread the good news without having to lift a finger.
*Please note that any login information used in the past for fundraising pages or registrations will not work on the new site.
Ability to create personal campaigns
The new website allows you to create your own fundraising events and / or campaigns and manage them via the website, and allows you to integrate your campaign with your social media outlets. A custom badge is even available to embed on your own blog or website if you choose. Setting up a recurring gift option is also available.
Walk tools
Encouraging your friends, family and colleagues to join you at your local Walk is now easier than ever, as you simply need to refer them to the website to register, contribute to your Walk, learn more about the walk, start fundraising, and download Walk support materials. The entire process is streamlined to make it easier for everyone.
We hope that you are as excited about this new development as we are-and that you find the new website more comprehensive, easier to use and more informative. Of course, launching a new website can present a few little technical issues to work out; so, if any issues with navigation and / or usability arise for you, please let us know immediately so we can address the issue. We welcome all of your feedback.
Thank you for your ongoing support of the Angelman syndrome community and the Angelman Syndrome Foundation.
Comments
- Barbara Yewasis
-
I am writing a paper about Angelman Syndrome as a class assignment in my studies as a graduate student in early childhood. Anything you can send me to help with a power point presentation such as pictures and new information would be helpful. Thank you.
- April 6, 2012, 11:34 AM
- Reply
- De'itra Rucker - ASF Resource Specialist
-
Hi Barbara, The Angelman Syndrome Foundation website is full of facts and good information on AS. The link above is to an article that really breaks down the syndrome well. If you'd like our brochure or any additional info you can't find on the website, please feel free to contact me personally.
- May 10, 2012, 11:05 AM
- Reply
- Adel
-
Hi, my name is Claudine i have a downs son named Carn he is 21 years old. Jannice (Gabs mum) has told me about this club and that there is an upcoming camp that we are neterestid in. Was wondering if you could give me some information and dates etc would be great to hear from you .
- April 12, 2012, 6:56 AM
- Reply
- De'itra Rucker - ASF Resource Specialist
-
I'm sorry Adel, unfortunately we're not sponsoring any camps at this time. Perhaps check with Jannice regarding which organization is sponsoring the camp she was referring to. I do however from time to time, get information about retreats and conferences for parents of special needs children. Check our website periodically for updates, or drop me a note at drucker@angelman.org
- May 10, 2012, 11:12 AM
- Reply
- Dallas
-
I have a 9 year old daughter named Melody with Angelman's Syndrome. My husband and I are raising awareness about AS and would love to hear from anyone who might have any information they would like to share. also, we are trying to locate other families with children with Angelman's Syndrome. Please contact us.
- May 8, 2012, 1:59 PM
- Reply
- De'itra Rucker - ASF Resource Specialist
-
Hi Dallas & Melody! The Angelman Syndrome Foundation, is glad to hear about you and your family spreading the word and increasing awareness of AS. Keep up the good work! We are here to help all we can. Here at ASF we also keep a list of AS Families, who are willing to be contacted by state. Just send me a note and I'd be glad to share their contact info with you. I can be reached at drucker@angelman.org Thanks for contacting ASF
- May 10, 2012, 11:26 AM
- Reply
- Holly Leonard
-
I have a 7yr son Logan with AS and am trying to find families to talk to we have twins that are a 1yr now and I'm having a hard time trying to keep the balance caring for all three Logan still needs lots of attention but the others do too.
- May 10, 2012, 7:47 AM
- Reply
- De'itra Rucker - ASF Resource Specialist
-
Hi Holly, Sounds Like you have your hands full. Connecting with other AS Families can be a great support. Please drop me a note and let me know what state you live in and I will send you the contact info of other AS Families in your state, willing to help. I can be reached at drucker@angelman.org
Also if you have regular access to the internet, there are several groups on Facebook that have been a wonderful support to AS Families.
http://www.facebook.com/AngelmanSyndromeFoundation
http://www.facebook.com/groups/2211039808/
http://www.facebook.com/groups/angelmanconnections/
Best wishes
- May 10, 2012, 11:38 AM
- Reply
- eric l hawkins
-
My 5 year old son Adam has AS he seems fascinated by any kind of fan that blows air on his hands, he gets really upset if he can't get to it. I was wondering if any other parent has seen this. Also he had eye surgery for Strabismus when he was 2 but now the Eye Surgeon wants to do another eye operation for Brown Syndrome wanted to know if any parent had the same eye issues, thanks.
- October 3, 2012, 10:28 PM
- Reply
