Angelman Syndrome Foundation's News Room is an aggregation of several sources. We will post exciting announcements pertaining to ASF in addition to news about Angelman syndrome from within our community and from external media sources. See a story you think we should share? Send an email to email@example.com with the information. Thank you!
- Symposium Summary: Ethics and Rare Disease Clinical Trials
- July 18, 2012
- By Rare Disease Report
This past June, the Angelman syndrome foundation invited six internationally renowned and accomplished panelists to discuss the "Ethical Considerations in Rare Disease Research" at a dinner symposium. The discussion centered around 7 questions that the chairpersons asked the panel based on queries they had received. Below are highlights from that discussion.
- Managing Angelman Syndrome
- July 9, 2012
- By Clinical Neurology News
At the Angelman Syndrome Foundation Scientific Symposium in Rockville, Md., Dr. Ron Thibert of Massachusetts General Hospital in Boston discussed the presentation and management of patients with Angelman syndrome.