Forums and Discussions

The Angelman Syndrome Foundation Forums & Discussion pages are a members only benefit to those who wish to ask questions and talk about the many facets of Angelman Syndrome. Open discussion may draw a wide variety of opinions and ideas in any subject area. We request that all discussions and comments remain respectful and focused on Angelman-related topics. The ASF does not support or endorse any particular treatment, medication or therapy. We encourage parents to support one another with suggestions and to contact their child's physician for final approval.

 

General Rules:

  • Before posting a new topic, read through previous threads to see if this discussion has already been posted. Only post if you are introducing yourself as a new user, have a unique question, alternate solution, different perspective, or additional experience to add than those already posted.
  • While debating and discussion is encouraged, the ASF will not tolerate malicious or insulting posts or personal attacks.
  • ASF does not allow unsubstantiated posts that are negative in nature to the forum, or to the organizations represented by the forum.
  • ASF reserves the right to remove offensive posts without notice.
  • While these rules cover most common situations, they cannot anticipate everything. Consequently ASF reserves the right to take any actions deemed appropriate to ensure these forums are not disrupted or our members are abused in any way.
  • If you need help on how to use the forum, please click the help link in the upper right hand corner once you log in.

Forum Etiquette:

  • Read the forum rules above. 
  • Remember that words can be misconstrued. Use descriptive wording to ensure your meaning is clear. By the same token, don't jump to conclusions about another person's intent in posting an unclear comment. When in doubt, ask for clarification.
  • Type in lowercase or standard case, not in all caps. Using all caps equates to shouting.
  • Say online exactly what you would say in person. Do not put it in the forum if it is something you would not say face-to-face to someone.
  • Be respectful. Your opinion is one of many and you may disagree with another person, but please do not be disrespectful or rude.
  • Be supportive and encouraging. 

Members may click here to visit our forums.