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Resources

We hope you find these resources helpful in caring for your individual with Angelman syndrome. Please note these links take you to external websites, and ASF is not responsible for the content of these sites.

If you have a resource you would like us to include, please send an email to info@angelman.org.

 

Recently Added Resources

Added 5/1/15
 

Support Resources

Angelman Syndrome Forum
Online Angelman syndrome community.
www.angelmanforum.org

National Disability Navigator
www.nationaldisabilitynavigator.org


State Resources

The Arc of Georgia
www.thearcofgeorgia.org

Maxim Healthcare Services in Portland, Maine
Home health care for adults, seniors and children.
www.maximhomecare.com

Home Health Care Visiting Nurses in South Maine
www.homehealth.org


Educational Resources – Special Education

A group of professionals who offer a Comprehensive Education & Fellowship to Medical Professionals for the care of children with Autism Spectrum Disorders and related chronic complex conditions.
www.medmaps.org


International Resource

Greece - www.angelman-syndrome.gr


Therapy Resources

Music Therapy
Board certified music therapist to clients ranging from infancy to geriatrics with a variety of ailments and abilities in the Salt Lake, UT area.
www.PureProgression.com


Household and Support

Project Lifesaver - Citizens enrolled in Project Lifesaver wear a small personal transmitter around the wrist or ankle that emits an individualized tracking signal. If an enrolled client goes missing, the caregiver notifies their local Project Lifesaver agency, and a trained emergency team responds to the wanderer’s area. Recovery times for PLI clients average 30 minutes — 95% less time than standard operations.
www.projectlifesaver.org


Recreational Resources

Sand Rider – custom beach wheelchairs
A new beach wheelchair  to ensure that everyone can enjoy being out of doors for the day, swim at the beach or share off-road activities on gravel trails, grassy fields, swampy areas or snow. 
www.custombeachwheelchair.com


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