International Angelman Syndrome Resources

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International AS Resources

Save the Children
Save the Children is the leading independent organization creating real and lasting change for children in need in the United States and around the world. It is a member of the International Save the Children Alliance, comprising 27 national Save the Children organizations working in more than 100 countries to ensure the well-being of children. Save the Children responds to any emergency that puts at great risk the survival, protection, and well being of significant numbers of children, where addressing the needs and well-being of those children is beyond the indigenous coping capacity, and where Save the Children is able to mobilize the financial and human resources to take urgent action on their behalf.

Catholic Relief Services (CRS - USCC)
Catholic Relief Services was founded in 1943 by the Catholic Bishops of the United States to assist the poor and disadvantaged outside the country. Working through local offices and an extensive network of partners, CRS operates on 5 continents and in over 90 countries. They aid the poor by first providing direct assistance where needed, then encouraging these people to help with their own development. Together, this fosters secure, productive, just communities that enable people to realize their potential.

United Nations Enable
United Nations Enable is the official website of the Secretariat for the Convention on the Rights of Persons with Disabilities (SCRPD) in the Department of Economic and Social Affairs (DESA) at the United Nations Secretariat. The website provides public information on topics related to disability and the work of the United Nations for persons with disabilities.

Association for the Advancement of Assistive Technology in Europe
The AAATE is the interdisciplinary pan-European association devoted to all aspects of assistive technology.

Angelman Syndrome Forum
This forum is an International forum and is not affiliated with any organization or group. It has been created for the purpose of allowing anyone in the International AS community - Families, Caregivers, Medical Professionals to post public and private messages or stories for others to read and reply or make comment on.

AS Listserv
The AS Listserv is not affiliated with the ASF. It is an email resource to ask questions to fellow participants and get feedback from your questions.

Australia Angelman Syndrome Association

Belgium - Angelman Syndroom België (Angelman Syndrome Begium)

Brazil - Association Community Syndrome of Angelman (ACSA)

Canadian Angelman Syndrome Society

Czech Republic

Denmark - Angelmanforeningen i Danmark

France - Association Francophone du Syndrome d'Angelman (AFSA)

Germany - Angelman e.V.

Greece -
Find them on Facebook or  Email:

Ireland -
Email:   Find them on Facebook

Israel -

Italy - Organizzazione Sindrome di Angelman (O.R.S.A.)

Japan - Japanese Angelman Syndrome Support Group (JASSG)

Angelman Syndrome Foundation of Quebec

The Netherlands - Dutch Angelman Syndroom Association
Prader-Willi/Angelman Vereniging

Spain - Asociación Síndrome Angelman de España (A.S.A)

Sweden - Angelmans Syndrom Föräldrarförening (ASF)

United Kingdom - Angelman Syndrome Support, Education and Reseach Trust (ASSERT)

Contacts in Countries with no National Associations:

Amira Khalifa -

Belgium and Luxembourg
Isabelle Wegnez

Marina Cardoso:

Janusz Rozalski -