Upcoming Events
Throughout the year, the Angelman Syndrome Foundation hosts and participates in events across the country. In an effort to keep you updated with the lastest information, we will post and link to event information on this page as it becomes available. If you have questions or concerns about any information you see on this page, please contact us.
If you wish to view a listing of ASF events currently open for registration, please click here.
ASF also proudly posts community events as we receive them - to submit a local event in your area, please email kwick@angelman.org with the details.
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For more than 20 years, the Angelman Syndrome Foundation has made great strides in advancing support for individuals with Angelman syndrome and towards finding a cure. But none to date have proven more successful than accomplishments reached during the past 14 months. During this time, research funded by the ASF discovered a possible treatment for Angelman syndrome, as well as identified the underlying causes of life-threatening symptoms such as seizures. You see, your donation makes all the difference.
Learn more
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The 2013 ASF Calendar of Angels is now available! Containing over 400 beautiful, smiling faces, the 2013 ASF Calendar of Angels is the perfect holiday gift to inspire, delight and spread awareness about Angelman syndrome. The cost of each calendar is $15 including shipping and handling. While we try to ship orders within 1-2 buisness days, we cannot guarantee arrival dates. All proceeds benefit the Angelman Syndrome Foundation.
Order a Calendar
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| 02/15/2013 |
International Angelman Day |
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| 02/28/2013 |
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Rare Disease Day is an international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year, in 2012 this was observed on February 29, 2012. Learn more about the History of Rare Disease Day, Past Successes or the Goals and Plans for this year.
Anyone can be involved in Rare Disease Day and there are many suggested activities. The day has been established as a grassroots advocacy day and we encourage everyone to participate in some way.
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| 05/18/2013 |
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The Angelman Syndrome Foundation Walk, formerly the One Step Closer ASF National Walk, has been an essential source of funding for the Angelman Syndrome Foundation since its start in 1999. What began as a single volunteer walk site, now includes 30 walks across the country and is recognized as the top fundraising event for the organization. Through education, information, research, advocacy and support, your participation in the National Walk helps all of us at ASF take strides toward improving the lives of those impacted by AS. With your help, we are moving closer to powerful treatments and an eventual cure for Angelman syndrome. We are continually grateful for the support that we receive year after year.
To learn about what your Walk donations support and receive updates about the upcoming Walk, click below.
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07/23/2013-
07/24/2013
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More information about the Scientific Symposium is forthcoming, be sure to check the official Symposium page often for new announcements!
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07/24/2013-
07/26/2013
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The 2013 ASF Biennial Conference & Scientific Symposium will be held July 23 – July 26 at the Walt Disney World Swan & Dolphin. We try our best to keep conference costs as low as possible while still providing you with a conference experience to remember. Ticket types include: Full Conference, One-Day, Child/Individual with AS & Care Provider, Scientific Registration, Scientific Observer, and several add-ons like Meal Options and a Family Event. For more information, call the ASF office at 630-978-4245 or email Sheila Wenger at swenger@angelman.org.
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