Stories, comments, insights

ASF Blog

April 23, 2021

How To Secure Insurance Coverage for a Safety Bed

This blog and links to supplemental information was provided by Abram’s Nation, a platinum sponsor of the 2021 ASF Walk.   Each state can be different, so it is important to know the insurance requirements before submitting your request for coverage. Here is […]

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April 6, 2021

Sibling Spotlight: Henry Grover

Henry is 10 years old and is from Indiana. He loves hot wheels, baseball, scouts, making crafts, watching YouTube and being with his Granny and Hoho and his Nana and Papa. His parents Marisa and JJ Grover are active members […]

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January 1, 2021

2020 Wrap Up

A message about the year 2020 from the Angelman Syndrome Foundation.

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October 8, 2020

Duck Race in Denver

A few months ago, Stacey Davis and some friends discussed hosting an event to bring their community together and support a charity. Little did Stacey know that her friends decided they wanted to honor the Davis family and their 19-year-old […]

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September 18, 2020

Hope and Empowerment through Advocacy for a Father

Curtis Hanson and his wife, Kristen, are parents to two incredible girls Kaia, 6 and Emma, 4. Both of their daughters have an Angelman syndrome diagnosis of UBE3A mutation. When they received the diagnosis, Curtis said it felt like “so […]

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September 18, 2020

27 hours of Crossfit for Cameron

In 2018, John ‘Scotty’ Mace a former member of the Royal Australian Air Force, started a 24 Hour CrossFit Challenge in honor of son Cameron while stationed at Buckley Airforce Base in Denver, CO.  While in Colorado, working in Defense […]

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June 10, 2020

Family from Peru finds Angelman family in Minnesota

Written by: Kim Rossow & Mapy Estupiñan Perez   Greetings from Minnesota!  I’m Kim Rossow, an ASF Family Champion in Minnesota.  It is both my personal and professional passion to connect with families and support parents in navigating their new […]

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May 13, 2020

Determined to be Resilient

Is isolation starting to wear on you?  Have you found yourself okay one day, and then struggling with new emotions and stress the next?  I know I have – and I’m a positive, happy person by nature!  So, feeling this […]

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