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November 25, 2019

Ladder Database

A new network platform, Linking Angelman and Dup15q Data for Expanded Research (LADDER), will offer caregivers access to information about a larger population of patients living with Angelman or Dup15 syndromes to better inform their decisions regarding treatments and interventions. […]

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November 18, 2019

Announcing the 15q Clinical Research Network

Angelman Syndrome Foundation and Dup15q Alliance Announce Development of the International Clinical Research Network in efforts to help those living with 15q syndromes.  Thousands of families affected by Angelman syndrome (AS) and dup15q syndrome will soon have greater access to […]

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Dr. Mark Zylka
September 18, 2019

This is what ASF Funded Research can do!

A UNC Healthcare announced on September 17, 2019: The National Institutes of Health have awarded two separate grants totaling $6.1 million to Mark Zylka, PhD, director of the UNC Neuroscience Center.at the UNC School of Medicine. One of these projects […]

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Amanda Moore presenting Art Beaudet, MD with an award
August 4, 2019

ASF Honors Award Winners at the 2019 ASF Conference

At the 2019 ASF Scientific Symposium and Family Conference in Louisville, KY, the Angelman Syndrome Foundation recognized four people with special awards at the Family Conference Welcome Reception.  The board and staff of the Angelman Syndrome Foundation, as well as […]

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Elizabeth Jalazo
June 12, 2019

New Director of Clinical Integration

The Angelman Syndrome Foundation (ASF) has announced that Dr. Elizabeth Jalazo, a pediatrician at the University of North Carolina in Chapel Hill, will take on the new position of Director of Clinical Integration for the ASF. In her role as […]

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May 30, 2019

Anxiety in Angelman Syndrome

Important work coming out of the ASF Clinic Network at the University of North Carolina at Chapel Hill. Did you know that anxiety concerns are reported in 40% of people with AS? Characterizing that anxiety is critically important to design […]

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