United to Fund Newborn Screening Grant
November 2, 2021

Newborn Screening Grant for Early Check

  In 2018, the ASF co-funded a feasibility study to test a newborn screening for Angelman syndrome, Prader-Willi syndrome and dup15q syndrome.  As always, we thank our generous donors! Your support and belief in the ASF mission makes it possible […]

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April 19, 2021

ASF and FAST Unite for Legislative Working Group

FAST, the Foundation for Angelman Syndrome Therapeutics, and ASF, the Angelman Syndrome Foundation, announce a collaboration for a legislative working group focused on furthering the awareness and treatment of Angelman syndrome through legislative advocacy. The legislative working group will continue […]

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ASA and ASF Working Together
November 17, 2020

Joint Initiative between ASA and ASF

The International Angelman Syndrome Alliance (ASA) and the Angelman Syndrome Foundation (ASF) announced a newly formed joint initiative: the Global Community Advisory Board (CAB). They will work together to represent the Angelman community as a unified voice when engaging with […]

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Coronavirus image
March 13, 2020

Angelman syndrome and Coronavirus (COVID-19)

Coronavirus Disease 2019 (COVID-19) Questions and Answers (FAQs) Due to quickly evolving information, recommendations may be subject to change and will be updated as needed. The 15q Clinical Research Network has prepared these FAQs to address concerns from the Angelman/Dup15q […]

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ASF Advocacy Statement
September 18, 2017

Statement Regarding Healthcare Legislation in the US

The Angelman Syndrome Foundation is issuing the following statement regarding healthcare legislation in the US because of its impacts on the lives of people with Angelman syndrome and their families. Statement from Angelman Syndrome Foundation Board of Directors: The healthcare […]

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