2019 ASF Research Symposium
& Family Conference

Louisville, Kentucky

Research Symposium July 23 – 24  |  Family Conference 24 – 27

Angelman Syndrome Foundation 2019 Research Symposium and Family Conference

AS Families fight for their loved one with AS every day. What better place to gather than Louisville, the home of Muhammad Ali – the place where he started his fight. The gloves are off as we come together for interactive learning sessions, activities and 1:1 opportunities to engage with AS experts and peers.

Together we will all knock out AS!  #knockoutAS

About the 2019 Conference


This is a tentative schedule that will be updated and changed as plans/speakers are finalized.


Wednesday, July 24

Sibshops: For Siblings Only (Ages 6 – 18+)


ASF Conference Welcome and Opening Session


AS Clinics: What to Expect with Your Visits

Just for Moms Just for Grandparents
Just for Dads Just for Other Family Members


Keynote Research Speaker – Research Updates


Current Treatments & Efficacy in AS


Welcome Reception


Thursday, July 25

A to Z / Angelman throughout the Lifespan


Seizures in Angelman Syndrome
AS Clinic Neurologist Panel


GI Issues Neurobehavioral Approaches I
AS Genetics 101 Healthy Marriages I


LGIT & Ketogenic Diets Neurobehavioral Approaches II
Medical Emergencies/Preparedness Healthy Marriages II

15 Minute Break


Anxiety & Challenging
Having a sibling with a DD Healthy Single Parents


Dinner on your own


Evening Drop in Sessions


Friday, July 26



Landscape of resources for adults with complex neurodevelopmental disorders


How to find, hire, train & retain careproviders for your adult


15 Minute Break

Life Away from home:
Home-based waivers &
In-home supports


Lunch on your own

Life Away from your Home:
Day Programs & Employment
Creating a Meaningful
Day/Life at Home &
in the Community

15 Minute Break


Letting Go, Trust, Continued Involvement: A How to for Parents


Chipping Away at the Mountain: Your Action Plan


Overview of devices and systems: Making sense of all the AAC options


Introduction to Core Word AAC Systems


15 Minute Break

Beginning the
PODD Journey
Core Word Modeler with Proloquo2Go


Lunch on your own

Getting Started & Early Assessments Social Communication – Social Commenting


15 Minute Break

Shared Reading Social Communication – Storytelling


Finding Allies and Developing Next Steps


Saturday, July 2


Advocating for your Child
at IEP Meetings
Government Benefits & Resources Special Needs Trusts & Life Vision Planning


IEP Goals & Objectives Telling your Story: Effective Advocating
Special Needs Trusts & Life Vision Planning (cont’d)


15 Minute Break


Now What? Bringing it all Together: What We’ve Learned & Where to Go from Here


Closing Session


The 2019 ASF Conference will take place at the:

Marriott Louisville Downtown
280 W Jefferson St, Louisville, KY 40202

Marriott Louisville Downtown

Room rate: $159/night + tax

Group name: Angelman Syndrome

Hotel space books up as the conference gets closer.  Make sure to reserve your room as soon as possible to ensure you will be in the same hotel as the conference.


The ASF will be offering a limited number of scholarships to aid families who may not otherwise be able to attend.  Complete the Scholarship Application now.

Budget Planner

Download our Budget Planning Worksheet and start planning your trip.