2019 ASF Research Symposium
& Family Conference

Louisville, Kentucky

Research Symposium July 23 – 24  |  Family Conference 24 – 27

Angelman Syndrome Foundation 2019 Research Symposium and Family Conference

AS Families fight for their loved one with AS every day. What better place to gather than Louisville, the home of Muhammad Ali – the place where he started his fight. The gloves are off as we come together for interactive learning sessions, activities and 1:1 opportunities to engage with AS experts and peers.

Together we will all knock out AS!  #knockoutAS

About the 2019 Conference

 

This is a tentative schedule that will be updated and changed as plans/speakers are finalized.

 

Wednesday, July 24

Sibshops: For Siblings Only (Ages 6 – 18+)

 

ASF Conference Welcome and Opening Session

 

AS Clinics: What to Expect with Your Visits

 
Just for Moms Just for Grandparents
 
Just for Dads Just for Other Family Members

 

Keynote Research Speaker – Research Updates

 

Current Treatments & Efficacy in AS

 

Welcome Reception

 

Thursday, July 25

A to Z / Angelman throughout the Lifespan

 

Seizures in Angelman Syndrome
AS Clinic Neurologist Panel

 

 
GI Issues Neurobehavioral Approaches I
 
AS Genetics 101 Healthy Marriages I

 

 
LGIT & Ketogenic Diets Neurobehavioral Approaches II
 
Medical Emergencies/Preparedness Healthy Marriages II

15 Minute Break

 

 
Anxiety & Challenging
Behaviors
Having a sibling with a DD Healthy Single Parents

 

Dinner on your own

 

Evening Drop in Sessions

 

Friday, July 26

 

ADULT SUPPORTS & SERVICES

Landscape of resources for adults with complex neurodevelopmental disorders

 

How to find, hire, train & retain careproviders for your adult

 

15 Minute Break

 
Life Away from home:
Housing
Home-based waivers &
In-home supports

 

Lunch on your own

 
Life Away from your Home:
Day Programs & Employment
Creating a Meaningful
Day/Life at Home &
in the Community


15 Minute Break

 

Letting Go, Trust, Continued Involvement: A How to for Parents

 

Chipping Away at the Mountain: Your Action Plan

COMMUNICATIONS

Overview of devices and systems: Making sense of all the AAC options

 

Introduction to Core Word AAC Systems

 

15 Minute Break

 
Beginning the
PODD Journey
Core Word Modeler with Proloquo2Go

 

Lunch on your own

 
Getting Started & Early Assessments Social Communication – Social Commenting

 

15 Minute Break

 
Shared Reading Social Communication – Storytelling

 

Finding Allies and Developing Next Steps

 

Saturday, July 2

 

Advocating for your Child
at IEP Meetings
Government Benefits & Resources Special Needs Trusts & Life Vision Planning

 

IEP Goals & Objectives Telling your Story: Effective Advocating
Special Needs Trusts & Life Vision Planning (cont’d)

 

15 Minute Break

 

Now What? Bringing it all Together: What We’ve Learned & Where to Go from Here

 

Closing Session

 

The 2019 ASF Conference will take place at the:

Marriott Louisville Downtown
280 W Jefferson St, Louisville, KY 40202

Marriott Louisville Downtown

Room rate: $159/night + tax

1-800-533-0127
Group name: Angelman Syndrome

Hotel space books up as the conference gets closer.  Make sure to reserve your room as soon as possible to ensure you will be in the same hotel as the conference.

Scholarships

The ASF will be offering a limited number of scholarships to aid families who may not otherwise be able to attend.  Complete the Scholarship Application now.

Budget Planner

Download our Budget Planning Worksheet and start planning your trip.