Advocacy
Rare Disease Week on Capitol Hill
February 28 – March 2
Hosted by the Rare Disease Legislative Advocates (a program of the EveryLife Foundation for Rare Diseases). Advocates from across the US make their voices heard by their Members of Congress.
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Sign up to view the event virtually.
Rare Disease Legislative Advocates Resources
Interested in becoming a stronger advocate? Sign up to receive information about programs and services to help.
Rare Advocates Resources