Get Answers about Roche Clinical Trail

Get Answers about Roche Clinical Trail

On June 21, Roche made public it’s intention to not to move forward with any new clinical trials for rugonersen (Tangelo program) and has initiated the search for an external partner to take over the development. 

See their letter to the community

The ASF & FAST have been working to get answers to questions raised by the community about this decision.

Roche has declined our request for a community webinar, but has agreed to answer questions in written format. While we have expressed our disappointment to Roche with this approach, we are appreciative of their willingness to help provide answers. We will gather questions, submit to Roche, and share the answers they provide once they are curated.
Submit your questions to Roche by Tuesday, July 4 at 11:59pm CT.  
Webinar on Friday, July 7 at Noon EST
ASF & FAST will also host a webinar with Dr. Elizabeth Berry-Kravis, a Principal Investigator of the Roche (Tangelo) program. This will be recorded for those who are unable to attend.