improving quality of life

ASF Family Fund Impact Stories

The ASF receives funding from personal donations and organizations, like CASS and the Fighting Angels Fund that make the ASF Family Fund possible. Below, find stories from recipients of ASF Family Fund grants and how receiving funding has impacted their individual with AS. 

If you have donated to the ASF Family Fund, THANK YOU! We hope these stories make you smile knowing that you have directly helped someone with AS.

Titus in his Abram’s Nation Safety Sleeper

Titus – Abram’s Nation Safety Sleeper

Three year old Titus and his family were awarded an Abram’s Nation Safety Sleeper.

“This bed has changed our nights . . . and days for that matter. Having an enclosed, safe bed has allowed Titus to sleep at night. We also love that he has a sense of normalcy with a cool looking big boy bed. We do not even know where to begin in thanking you. Our family has peaceful nights and restful sleep because of you. To have an organization who utterly understands the need, is invaluable. Thank you!”

– Desiree Lambert, Titus’ mom

Poppy – WIKE Special Needs Trailer

The Newell Family loves outdoor adventures and were adamant that Poppy would always be included in these activities.  As Poppy got older, they needed something different to continue their experiences. In doing some research, they discovered the WIKE Special Needs Trailer, which would be perfect for their family.  Almost simultaneously, the Newell family came across the ASF Family Fund and took a leap of faith!  Poppy was awarded the WIKE and immediately fell in love.

“We want to thank the Angelman Syndrome Foundation for their generosity. We don’t know all of the experiences Poppy will gain with her trailer, but we can be certain that she will have the freedom and ability to explore the world around her.”

-The Newell Family

Bryce in his new backyard

Bryce – Backyard Glow Up

Bryce loves to be outside and play, but he was unable to play in his own backyard due to holes, uneven ground and poison ivy. Bryce’s mom applied for an ASF Family Fund grant and was awarded a backyard clean up. Now Bryce can run and play outside without worry of injury or poison ivy.

“We can’t thank ASF for all that they have done for us and continue to do. We would be lost without you in this journey! Thank You from the bottom of our hearts.”

-Bryce’s mom, Megan Gloeckner 

Jackson – Communication Package

Unfortunately, due to Covid, Jackson Selby was no longer able to attend his therapies and maintain his routine.  Todd and Lauren Selby were awarded the ASF Family Fund Grant to provide an iPad, Lamp Communication App and keyguard to help their son learn to communicate. 

“Our family has been directly impacted by the education, family outreach, uplifting news, and many other programs ASF does for the community.  We are thankful to be surrounded by ASF and the community.”

-The Selby Family

Oceano – Freedom Jogger

I want to thank the Angelman Syndrome Foundation, for choosing our family to be among the recipients for the first ASF Family Fund grant. With this grant, we were able to all run together again as a family. Our son, Oceano, had outgrown his previous racing stroller and we struggled to find something that satisfied his various needs. Now, we have a stroller that is durable, stable, comfortable, will grow with him, carry his emergency equipment, and make him feel like he’s flying! Our son loves his Freedom Jogger as do we.

This past International Angelman Day we used his new jogger as we ran in a local race. Oceano, Isla (baby sister), Mom, Dad, Grandma, and Grandpa, all wore our Angelman shirts and ran together as a family. This was such a wonderful feeling and we are so grateful for the ASF Family Fund to of helped make this possible!

-Vanessa Patterson

Vivienne – Convaid EZ Rider

We are very grateful for the generosity of the ASF Family Fund. We were awarded a grant for the purchase of a new Convaid EZ Rider for our daughter, Vivienne.

While we always encourage exercise and walking for further muscular development, this stroller will be instrumental when we travel and in situations out in public, where she may become overwhelmed while walking and will need periods of rest. It will also provide her with comfort and security in places where proper accommodations for special needs children are not available.

Vivienne loves this stroller more than her previous one. She finds it very comfortable and gives a thumbs up every time we go out with it! This is a Godsend for us. Thank you!

-Maria Navarrete