The Angelman Syndrome Foundation is proud to announce a new collaboration with Cedars-Sinai Guerin Children’s to launch a new clinic for patients with Angelman syndrome, a rare neuro-genetic disorder. The clinic is led by Cesar Ochoa-Lubinoff, MD, MPH, director of […]
Read moreThe Angelman Syndrome Foundation and the Dup15q Alliance are proud to announce plans to launch a new clinic at Children’s Hospital of Philadelphia (CHOP) to better serve the Angelman and Dup15q communities. “We are excited to join other Angelman and […]
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On September 23, The Angelman Center brought together around 50 Families at the First National Gathering of families with Angelman syndrome (I Ogólnopolski Zlot Aniołków). The meeting was organized by the families from the Angelman Syndrome Project (Projekt Zespół Angelmana). […]
Read moreRoche has made the difficult decision not to move forward with a new clinical trial for rugonersen and has initiated the search for an external partner to take over the development. The conclusion of this trial undoubtedly brings feelings of […]
Read moreAURORA, IL – Angelman Syndrome Foundation (ASF) proudly announces the launch of the Jacob Pritzker Fellowship Program in honor of late board president Fred Pritzker. The Jacob Pritzker Fellowship Program was created to address the ever-increasing need for more physicians who […]
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Angelman Syndrome Foundation and Canadian Angelman Syndrome Society Partner to Expand Care for Individuals with Rare Disorder Two organizations leading activism for the rare and severe neuro-genetic disorder Angelman syndrome have entered a partnership to expand their reach. Angelman […]
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The Angelman Syndrome Foundation is proud to announce their partnership with Genefund Future Angelman Syndrome (GFAS Ukraine) to launch a new clinic to better serve the community in Ukraine. “Bright people are always visible in dark times. In the most […]
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The Angelman Syndrome Foundation is proud to announce their partnership with AngelmanUK to launch new clinics and expand existing clinics to better serve the community in the UK. “AngelmanUK is delighted to collaborate with the Angelman Syndrome Foundation (ASF) on […]
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