articles and announcements

Latest News

Ovid Therapeutics logo
December 6, 2018

Clinical Trial of OV101 in Pediatric Patients

On December 6, 2018, Ovid Therapeutics announced plans to move ahead with a single, pivotal Phase 3 trial of once-daily dosing of OV101 in pediatric patients with Angelman syndrome. This is based on its End-of-Phase 2 Meeting with the U.S. […]

Read more
Dr. Mark Zylka
November 22, 2018

Dr. Mark Zylka recognized as a 2017 AAAS Fellow

Congratulations to Dr. Mark Zylka who has been recognized as a 2017 American Association for the Advancement of Science (AAAS) Fellow! The AAAS fellows date back to 1874 and have included such prestigious recipients as Thomas Edison and Margaret Mead. More recently, […]

Read more
November 22, 2018

Newborn Screening Study for Rare Disorders

World’s Largest Newborn Screening Study for Angelman, Prader-Willi, Fragile X and Dup15q Syndromes Launches Nonprofits co-fund feasibility study to test screening tool for 75,000 newborns for Angelman, Prader-Willi, Fragile X and Dup15q Syndromes AURORA, Ill., and WALNUT, Calif. (November 8, […]

Read more
Angelman Syndrome Clinic Network
August 22, 2018

Rush University Medical Center Launches Angelman Syndrome Clinic

The First Comprehensive Clinic in Illinois Providing Support for Individuals with Angelman Syndrome (CHICAGO) – Rush University Medical Center and the Angelman Syndrome Foundation (ASF), a national nonprofit organization headquartered in Aurora, Ill., announced the official opening of the Angelman […]

Read more
June 19, 2018

Designation of Unique ICD-10 Code for Angelman Syndrome

Availability of Dedicated Code Will Advance Research and Development of Treatments for this Unique, Well-defined Syndrome and Lead to Improved Clinical Care Nashville, TN, June 19, 2018 — The Angelman Biomarkers and Outcome Measures (A-BOM) Alliance today announced that the […]

Read more
Dr. Arthur Beaudet
October 16, 2017

Dr. Art Beaudet to receive McKusick Leadership Award

Congratulations to Dr. Arthur Beaudet on being named the 2017 recipient of the Victor A. McKusick Leadership Award from the American Society of Human Genetics.  Dr. Beaudet has been a pioneering force in Angelman syndrome research; it’s truly because of […]

Read more