Sunday, March 8, 2020
11 am – 2 pm
Barrington Recreation Center
333 S Barrington Ave – Los Angeles, CA
My name is Quinn Pruitt and I am 10 years old. With the help of my family, friends and community, I have been raising money for the past 4 years to find a cure for my twin sister Emma who has Angelman syndrome and all the other angels and their families.
How To Support
Come Visit us for a Cup of Cocoa – and Meet Emma and Quinn!
Sunday, March 8 from 11 am – 2 pm
Barrington Recreation Center, Los Angeles, CA
All support goes directly towards therapeutics and helping other families through the Angelman Syndrome Foundation.
FOR MORE INFORMATION:
- 1965 – Dr. Harry Angelman first identifies Angelman syndrome
- 1997 – The cause of Angelman syndrome, a missing or improperly functioning UBE3A gene on Chromosome 15, is discovered
- 2007 – Angelman syndrome is cured in lab mice
- October 2012 – Emma diagnosed with Angelman syndrome and THERE ARE NO COMPANIES WITH DRUGS / THERAPEUTICS FOR AS
- 2017 – First Angelman syndrome therapeutic enters clinical testing on adolescents
- Today, there are over five drug companies (from start-ups to established) focused on delivering a therapeutic / cure for Angelman syndrome. Scientists believe that a cure for Angelman syndrome will lead to significant breakthroughs for more well-known disorders like Autism, ALS and Parkinson’s.