A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
See the complete list of topics.
Facebook | Facts about Angelman Syndrome | Family Related Topics | Female Issues | Financial Assistance | Financial Planning
Facebook Groups
Angelman Syndrome Foundation Public Facebook Page and ASF Private Group. Click Join to request access.
Find more Angelman syndrome related Facebook groups by searching for Angelman syndrome.
Below are links to some groups. Keep in mind that the ASF can only endorse those created and supervised by the ASF. As with any Facebook group, use caution!
- (Angelman syndrome ONLY) Vagus Nerve Stimulation Therapy
- ABA for Angelman syndrome
- Angelman syndrome Families of California
- Getting In-Sync with Angelman syndrome
- A Good Life for those with Angelman syndrome
- Angelman Connections
- Angelman directory
- Angelman Research & Trials
- Angelman syndrome
- Angelman syndrome
- Angelman syndrome & Alternative Health Approach
- Angelman syndrome Alberta-Saskatchewan Families
- Angelman syndrome AS Family Members
- Angelman syndrome Association of WA
- Angelman syndrome Families – BC
- Angelman syndrome Families – CANADA
- Angelman syndrome Families in Indiana
- Angelman syndrome Families of Arkansas
- Angelman syndrome Families of Utah
- Angelman syndrome Find a buddy
- Angelman syndrome For Parents, Educators, Therapists And Love Ones
- Angelman syndrome Foundation Walk Portland/Gresham, Oregon
- Angelman syndrome Imprint Centre Defect (ICD) Parent Chat
- Angelman syndrome India
- Angelman syndrome Ireland
- Angelman syndrome Manitoba
- Angelman syndrome -Nebraska
- Angelman syndrome NZ
- Angelman syndrome Seizure Information
- Angelman syndrome Siblings
- Angelman syndrome Support
- Angelman syndrome Support Network of Arkansas
- Angelman syndrome Tube Feeding Group
- ASF Walk Washington, DC
- Angelman syndrome, Arizona
- Angelman syndrome mosaic
- AngelmanUK Communication & Literacy.
- AngelmanUK Support & Chat
- ASF Walk San Diego
- ASF’s Run For A Cure
- Canadian Angelman syndrome Society Group
- Chasing Angels – Behaviors in Angelman syndrome
- Clinically Diagnosed Angelman syndrome Families
- Florida Angelman syndrome Parents
- Foundation for Angelman syndrome Therapeutics United Kingdom
- Gene Therapy for Angelman syndrome
- GI Issues in Angelman syndrome
- Homeschooled Learners with Angelman syndrome
- International Angelman Day
- Latter-day Saint Angelman syndrome Families
- Loghan’s Journey with Angelman syndrome
- Long Island “Angels”
- Low Glycemic Index Treatment in Angelman syndrome
- Minnesota Angelman syndrome Parents/Families
- Minocycline for Angelman syndrome: Results & Progress
- Pacific Northwest Angelman Syndrome Foundation
- PODD & Angelman syndrome
- PODD & Angelman syndrome (for professionals)
- Sharing Causes of Mortality in Angelman syndrome
- South African Angelman syndrome Group
- Support For Male Teens, Pre-puberty and Up (Angelman syndrome)
- Testing for Angelman syndrome
- The Angelman syndrome Group
- The Loving Angels Support Group
- UK Angelman syndrome Mums
- VA & NC Angels (Angelman syndrome)
- VUMC Angelman syndrome
- Wichita Angelman syndrome Volunteers
- WINGS for Angelman syndrome
Angelman Family Contributions
Be careful!!!! Realize that everything you say in a private group is NEVER truly private.
AS Family Member
They are a great source of support and can ALSO be a source of depression when you read all kinds of negative things in FB groups.
AS Family Member
Facts about Angelman Syndrome
Facts about AS: 2009 document written by Charles A. Williams, M.D; Sarika U. Peters, Ph.D.; and Sarika U. Peters, Ph.D.
Family Related Topics
See P- Parents Health | See M- Marriage and Relationships | See S- Siblings
Angelman Family Contributions
Family members will have A LOT of opinions. Trust your gut and ALWAYS do what is best for your angel and your immediate family.
AS Family Member
Remember that moms and dads deal with AS differently!
AS Family Member
Female Issues
Angelman Family Contributions: Female Issues
Not all angel girls need to get on birth control immediately. Wait a few cycles and see what’s best for her. It’s not about you!
Norma, angel Katarina, age 20, Del +
When our daughter was older, we consulted with a gynecologist about birth control methods. As they say, unless you are with your child 24/7, there is always a risk- as awful as that seems. The method we chose was a low dose birth control pill. Under the directions of the doctor, we always skip the last “placebo” week and begin a new pack of pills. Consequently, our daughter does not bleed and this has improved her life tremendously. This wonderful doctor even came to the hospital when our daughter was having eye surgery under general anesthesia and performed a pelvic exam. An added benefit of birth control pills is reducing her risk of ovarian cancer.
AS Family Member
Financial Assistance
See the Resources & Education section and select Financial Assistance from the Categry dropdown menu, for a list of resources.
See Federal Resources for a list of Federal Programs for financial assistance.
Financial Planning
See the Resources & Education page and select Financial Planning from the Categry dropdown menu, for a list of resources.
Angelman Family Contributions
It is never too early to begin financial planning for your child’s future.
AS Family Member
Don’t expect our government to provide everything your angel will ever need. Try to be financially wise so you always have a little extra to provide things that government assistance won’t.
AS Family Member
