Massachusetts General Hospital
This website provides education about epilepsy and its impact on children and families. This site includes videos of families stories as well as information on diagnosis and treatment.

SeizureTracker
SeizureTracker.com is dedicated to providing people living with epilepsy and their doctors with free comprehensive tools to help understand relationships between seizure activity and anti-epileptic medications. Become active leaders in your individual with AS’s treatment, working hand-in-hand with doctors. Easy-to-use tools found at SeizureTracker.com allow you to create personalized reports of logged seizure activity and medication history that can be easily shared with their medical team.

SAMi
Sleep Activity Monitor with monitors abnormal movements with a loud alarm, see and hear what is happening and makes recordings that you can share with your doctors.

Embrace
Smart watch that monitors behavior and and sleep with alerts for unusual events.

Birdhouse Track Seizures app
Helps identify seizure triggers, keep a medication log and evaluate diets.

 

Low-Glycemic Index Treatment (LGIT) / Ketogenic Diet Resources

LGIT is a high-fat, limited-carbohydrate diet proven successful in reducing seizures in AS by up to 90%. Supervision by at physician familiar with the treatment is needed.

Angelman Syndrome Clinic at Massachusetts General Hospital
Where a group lead by Dr. Ron Thibert, D.O., neurologist and pediatrician at Massachusetts General Hospital, completed a clinical research study on LGIT.

The Charlie Foundation
Provides resources and information about diet therapies including recipes, kitchen products and a world wide list of locations where families can see a physician to be placed on the ketogenic diet.

ASF Educational Webinars

  • Learn the ABC’s of the Low-Glycemic Index Treatment (LGIT) from a Mother and Expert. – Sybille Kraft-Bellamy  Watch Now

Books

Ketogenic Diets – by Eric Kossoff MD and John M. Freeman MD
available on Amazon and Barnes & Noble

Ketogenic DietA Treatment for Children and Others with Epilepsy, by John M. MD Freeman
available on Amazon and Barnes & Noble

The Epilepsy Diet Treatment: An Introduction to the Ketogenic Diet – by M.D. John Mark Freeman and Millicent T. Kelly, R.D., L.D.
available on Amazon