Friends with Wings is for siblings, friends of siblings, cousins, friends, classmates, neighbors, nieces/nephews who are 18 and younger. Friends meet to have fun, share stories and learn about Angelman syndrome. Friends receive a t-shirt, participate in contests and learn how to have a voice for their friend with Angelman syndrome.
- Connect with others your age
- Learn about Angelman syndrome
- Learn about ways you can support your sibling/friend
- Spread awareness about AS
Questions can be directed to Kathryn Ely – firstname.lastname@example.org.
Scroll down to sign up. You’ll receive more information and a welcome packet.
2023 Meeting Dates
All meetings take place at 7:30pm EST | Register to attend
Text the word friends to (833) 456-3193 to receive text reminders and updates.
Sib Bash & IAD Plans
*Bring your favorite snack
Guests: Amanda Moore & Lesley McCallister
How did you celebrate IAD?
Rare Sibling Stories
*Show us your celebration pics
Guests: Jessica Duis, MD/Abby Turnwall
Latest Research in AS
*Bring all your research and science questions!
Guest: Genetic Counselor from UNC Chapel Hill
*Bring favorite Summer dinner/dessert
Guest: Dr. Wilfreda Lindsey
Back to School Party
Inclusion in school and differences in what you learn vs. your sibling
Guests: Michelle Harvey Martin, MEd
Guests: Your Sibling with AS