August 2, 2023

Clinical Care Tool Kit

Clinical Care Tool Kit. This comprehensive document combines several resources for caregivers and clinicians into one document. Included are:  Overall Standards of Care, Seizure Treatment Guidelines, Management of Nonconvulsive Status Epilepticus, General Anesthesia Best Practices, Myoclonus in AS, Physical Therapy and Occupational Therapy, LADDER Learning Network

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April 1, 2021

Seizures Playlist

The Seizures Playlist is a collection of webinars and ASF Conference session recordings about seizures in Angelman syndrome. A list of playlists can be found on the Educational Webinars page. 

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February 19, 2021

Medical Information about Seizures

Medical Information about Seizures See a collection of medical information that could be helpful to share with your medical team. Found under Resources > Seizures

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February 19, 2020


Myoclonus or Myoclonic seizures. Hear Dr. Thibert describe and explain myoclonus during a webinar about seizures.

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January 15, 2020

Seizure Survey Results

Results of the Seizure Survey study completed by Dr. Elizabeth Thiele in 2007. This study was funded by the ASF and provided care-providers and physicians valuable information about single anticonvulsant drugs and combination drug use for treatment of the seizure […]

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