February 21, 2022

Standards of Care for Angelman Syndrome

The Standards of Care for Angelman Syndrome was published in 2022. This collaborative project documents common issues that accompany AS and the most common and established ways of providing care for the issues. 

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January 26, 2022

State Insurance Guide

The ASF State Insurance Resource Guide is a state-by-state list of insurance  information about government agencies, waivers, contact information and more. 

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November 2, 2021

ASF Care Committee

ASF Care Committee If you know someone who could use some encouragement, make a request for the Care Comittee to send a “little sunshine” in the form of a card or package.

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September 2, 2021

Letter of Medical Necessity for a Safety Bed

Letter of Medical Necessity for a Safety Bed was written by clinicians at the Angelman Clinics. You can download and personalize the letter with the name and information about your individual with AS and send to your insurance provider. Many […]

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April 1, 2021

Long-term Planning Playlist

The Long-Term Planning Playlist is a collection of webinars and ASF Conference session recordings about several long-term planning topics like insurance, waivers, financial planning and more. A list of playlists can be found on the Educational Webinars page. 

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March 5, 2021

Counseling Service

Counseling Service. The ASF offers counseling services with a Licensed Clinical Professional Counselor, at no charge to Angelman families. Counseling Services are available for help in areas like (but not limited to) Caregiver stress, support with marital problems, stress management […]

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February 19, 2021

ASF Family Champions

ASF Family Champions   Need advice? Looking for Angelman families that live near you?  Need to vent or share some excitement that only another AS parent would understand? Family Champions are parents who are available to other families to share their […]

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February 19, 2021

ASF Resource Team

ASF Family Resource Team The ASF Family Resource Team is a group of people who have a family member with AS and are topic experts in their respective areas. Michelle Harvey, MEd – IEP and ABA  |  Eric Wright – […]

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