Current Research Studies

COA Measures in AS

COA Measures in AS

Clinical Outcomes Solutions (COS) is a healthcare research company that specializes in research about the impact of illnesses on people‚Äôs lives. COS is conducting a study on the experience of children with AS and is looking to obtain feedback on new questionnaires about AS symptoms. 

Participants will be compensated for their time and effort.

Participation

To participate, you must meeting the following criteria: 

  • Participants must be 18 years of age or older.
  • Be the parent, legal guardian, or primary caregiver and caring for an individual with AS
  • Your individual with AS is 1 to 12 years (inclusive)
  • Be willing to complete a one-time 60-minute, audio-recorded telephone interview

More Information or Begin

To see if you are eligible to participate, click to complete a screening survey.

Or copy and paste this link into your browser: https://clinoutsolutions.co1.qualtrics.com/jfe/form/SV_3qjX7Hnmi7W7tCR

 

If you have any questions, please contact Bridget at: ASinterview@clinoutsolutions.com  / 1 (312) 874-1868.

 

The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.