Current Research Studies

Caregiver Communication Survey

Caregiver Communication Survey

Vanderbilt University is seeking primary caregivers of individuals who have complex communication needs. The goal of this study is to gather information on training received (if any), to support and enhance their child’s communication skills and be able to make recommendations regarding communication system abandonment and decrease the impact these systems may have on the family. 


  • Be the parent or caregiver of an individual diagnosed with AS
  • Be willing to complete a 20-30 minute survey about your experiences with AAC and communicating with your individual


Complete the survey now

More information

Questions can be directed to: 

Emily Sheridan or
Dr. Alexandra Da Fonte at 


The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.