Current Research Studies

PANDAbox: Early Development in Angelman Syndrome

PANDAbox: Early Development in Angelman Syndrome

Telehealth Study on Early Development in Angelman Syndrome at Purdue University

The Purdue University Neurodevelopmental Family Lab is recruiting families of children with Angelman syndrome 6 – 18 months old. This study aims to improve understanding of how children with Angelman syndrome develop in early childhood, and be able to predict and optimize outcomes for individual children. 

Study activities are completed from home and participation involves: online survey/phone interview/day-long recording of your child’s vocalizations/play-based telehealth session with Purdue researcher. 

Families receive $55 in Amazon gift cards for each assessment ($165 total).

 

Participant Requirements

  • Have a child diagnosed with AS who is 6 – 18 months old
  • Family is willing to provide a copy of genetic or medical records verifying AS diagnosis
  • Primary language spoken at home is English and live in the US
  • Be willing to complete activities at home 3 times, 6 months apart (

Questions and How to Join

To participate or get more information about this study, contact Erin at Purdue University Neurodevelopmental Family Lab: nddfamilylab@purdue.edu  

 

The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.