PANDA: Early Development in Angelman Syndrome
Telehealth Study on Early Development in Angelman Syndrome at Purdue University
The Purdue University Neurodevelopmental Family Lab is recruiting families of children with Angelman syndrome 18 months and under. This study aims to improve understanding of how children with Angelman syndrome develop in early childhood, and be able to predict and optimize outcomes for individual children.
Participation involves completing online surveys, an audio recording of child’s vocalizations and a telehealth-based play session.
- Child diagnosed with Angelman Syndrome must be 18 months old or younger
- Family must live in the United States and speak English as primary language
- Have Wi-Fi in the home
Families will be compensated for their time ($55 per assessment time point) and will be given a brief developmental snapshot report.
The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.