Current Research Studies

PANDA: Early Development in Angelman Syndrome

PANDA: Early Development in Angelman Syndrome

Telehealth Study on Early Development in Angelman Syndrome at Purdue University

The Purdue University Neurodevelopmental Family Lab is recruiting families of children with Angelman syndrome under 5 years old. This study aims to improve understanding of how children with Angelman syndrome develop in early childhood, and be able to predict and optimize outcomes for individual children. 

Study activities are completed from home, and participation may involve completing web- and phone-based surveys, telehealth-based play sessions, and recording your child’s vocalizations.  

Compensation is provided for all studies.

Participant Requirements

  • Have a child diagnosed with AS who is younger than 5 years of age
  • Family is willing to provide a copy of genetic or medical records verifying AS diagnosis
  • Mother is 18 years or older and willing to participate
  • Child is biological descendant of mother (e.g. not adopted)
  • Family must live within the continental US

 

Questions and How to Join

To participate or get more information about this study, contact the primary investigator, Dr. Bridgette Kelleher and her research team: nddfamilylab@purdue.edu  |  756-494-3667

 

The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.