Survey Study to Inform Medical Community
The purpose of this study is to obtain information about the general quality of life of children and adults with Angelman syndrome, to better understand specific problems that occur in some individuals and to learn about effects of current treatments and newer medications. This information will help inform the medical community and advance their understanding and care for individuals with Angelman syndrome.
The survey will be open until September 10, 2021.
- Be the parent or caregiver of an individual with AS
- Be willing to complete a 15-minute online survey
Dr. Nancy Xi
The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.