Current Research Studies

Caregiver Survey on Symptoms

Caregiver Survey on Symptoms

Clinical Outcomes Solutions (COS) is a healthcare research company that specializes in research about the impact of illnesses on people’s lives. COS is conducting a study on symptoms the person you care for experiences and get feedback on a questionnaire assessing Angelman syndrome symptoms and their impact on day-to-day life.

Participants will be compensated $125.

Participation

To participate, you must meeting the following criteria: 

  • Participants must be 18 years of age or older.
  • Be the parent, legal guardian, or primary caregiver and caring for an individual with AS
  • Be willing to complete a one-time 60-minute, audio-recorded interview

More Information or Begin

To see if you are eligible to participate, complete a screening survey.

If you have any questions, please contact Hollie at: hollie.curgenven@clinoutsolutions.com  / 1 (520) 336-2250.

See a flyer about the study.

The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.