Current Research Studies

Video Capture Study

Video Capture Study

Casimir, a clinical research organization, Boston Children’s Hospital and Ionis Pharmaceuticals are in the process of developing an at-home assessment for potential use in clinical trials that would capture patients with Angelman syndrome in their everyday environment. 

Casimir is currently seeking participants for a pilot study to assess the feasibility of the at-home assessment. The intention of the study is to test the instructions, selected activities and acceptability of the Angelman Syndrome Video Assessment. The study does not involve any experimental drugs.

Compensation up to $100 is available.


To participate, you must meet the following criteria:

  • English speaking
  • Be parent or caregiver of an individual with AS at any age
  • Participate in two scheduled phone calls that take 30 – 60 minutes
  • Be willing to record videos of activities of daily-living using a smartphone or Wi-Fi-enabled

More info or to participate

Call or text (800) 699-2704. Or email

See a flyer for details.


The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.