Current Research Studies

Caregiver Wellbeing Telehealth Study

Caregiver Wellbeing Telehealth Study

Purdue UniversityThe ASF is funding the Well-CAST (Well being for Caregivers of children With Angelman Syndrome through Telehealth) study being conducted at Purdue University.  The goal is to determine how evidence-based interventions can be adapted to support caregivers of children with Angelman syndrome and their families via telehealth.
 
Hear more from Dr. Bridgette Kelleher: 
 

Participation

To take part, candidates must meet the following criteria (other criteria may also apply):

  • Parents of children between 2 – 8 years old
  • Documented diagnosis of Angelman syndrome
  • Be willing to virtually participate in a multi-week program; 1-2 times a week

More Information or to Enroll

All activities are conducted with clinician trainees at Purdue under the supervision of licensed providers.
Families will be provided with all necessary technology and receive compensation for their time ($10/hour via Amazon gift cards).
 

To enroll, please contact study coordinator, nddfamilylab@Purdue.edu.