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The 2008 ASF National Walk-A-Thon has been a tremendously successful, record-breaking event thanks to the thousands of volunteers and participants in 19 cities!
The 2008 ASF National Walk-A-Thon is on pace to break the $1,000,000 mark this year! Currently, just $19,000 short of our goal, we expect to exceed $1,000,000 to support Angelman-specific research, education and general support.
For further information click on left navigation bar to see national results and site-specific totals.
Angelman Syndrome (AS) has confused the medical community and parents of Angelman children for hundreds of years. Initially presumed to be rare, it is now believed thousands of Angelman Syndrome cases have gone undiagnosed or misdiagnosed as cerebral palsy, autism or other childhood disorders.
What is Angelman Syndrome? Click on the "About AS" tab to the left, and browse through our site for more information for families and professionals who want to know more about AS.
The Angelman Syndrome Foundation is a national organization of families, caregivers and professionals who care about those with Angelman Syndrome. It is a member organization of the International Angelman Syndrome Organization (IASO).
As described in our by-laws, ASF's Mission is to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for individuals with Angelman Syndrome, their families, and other concerned parties.
"Low Glycemic Index Treatment for Seizures in Angelman Syndrome" is a clinical study examining the effects of the Low Glycemic Index Treatment (LGIT), a medical dietary therapy, on seizures in people with AS.
Click here for details regarding this study.
New study now open for individuals with Angelman Syndrome, ages 8-16, with confirmed deletion. Siblings ages 10-16 (non-AS) are also invited to participate. Click here for study details.
We are currently seeking participants for a Vanderbilt Research Study with the purpose of learning more about the positive psychological experiences related to raising a child with a developmental disability. The study is being conducted by Teresa Ulman, MS, as a dissertation project under the direction of Dr. Elisabeth Dykens, PhD, through the Vanderbilt Kennedy Center. Click here for full participant announcement.
Please consider submitting an abstract for the 2008 Scientific Symposium. Click here for details.
The ASF 2009 Biennial Conference will be held July 29 - August 1 in Orlando, Florida at the Hilton in the Walt Disney World Resort. Check back for more information.
CD-Roms from the 2007 Biennial Conference are for sale through IntelliQuest Media. Click here for more information and to download an order form.
The Angelman Syndrome Foundation announces 2007 Scientific Research Award Recipients. Click here for more information.
The Angelman Syndrome Natural History Study is now open. Currently the study is being conducted in Boston, San Diego, Houston and Greenwood, SC. Click here for more information about the study.
As one of 48 rare disorders represented in the Rare Disease Clinical Research Network (RDCRN) the Angelman Syndrome Foundation would like to encourage you to Get Involved! Take Action! Register with the RDCRN Patient Contact Registry for possible participation in clinical trials (research). Click here to register.
Help spread awareness about AS by wearing groovy new Angelman Syndrome sweatshirts and polos! The AS Sweatshirt comes in two designs in youth and adult sizes. Polos come in adult sizes in navy blue and pink. Click on Shop at ASF on the left navigation bar to purchase yours today!
None of the information contained herein is meant to be a substitute for professional medical attention or advice.
Please send your comments about this site to info@angelman.org.
Angelman Syndrome Foundation
4255 Westbrook Drive, Ste. 219
Aurora, IL 60504
1-800-432-6435 or 630-978-4245
Fax: 630-978-7408
Email: info@angelman.org
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