The Angelman Syndrome Foundation's mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.
We are pleased to report that our organization is in the best financial condition in its history; has marshaled the assistance of a diverse group of world-class researchers; is funding cutting-edge research; and is committed to addressing the needs of its members.
During the two decades of our existence, the ASF has evolved and grown from a small group of concerned parents to a well-funded, well-run research-and-support organization capable of advancing the science and understanding of AS and improving the lives of people with this disorder.
Just as important, we have a clear indication of what is important to our community—a roadmap that we are committed to following.
The Foundation sponsors AS research through grants to researchers who pursue promising avenues of discovery. Since 1996, the ASF has funded 66 research grants totaling over $4.6 million. The ASF has awarded a majority of these funds ($4.5 million) beginning in 2005.
Education & Information
ASF is a national 501(c)(3) organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman syndrome as possible. The ASF sponsors a biennial conference which gives you the opportunity to hear the latest research results, therapeutic techniques, educational strategies, long-term planning and financial-planning information. The conference also offers many networking opportunities to talk to families that are dealing with the same issues you might be having while caring for an individual with Angelman syndrome.
The ASF publishes a regular electronic newsletter with information about events, research, and announcements. The newsletter can provide helpful insights for AS families and friends, and inform readers of any new research and medical developments that could better the lives of AS individuals and their families.