Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Despite the growing amount of AAC information that is available, parents of children with very limited language struggle to support their children’s communicative development. Stepping Into AAC is a program to support your individual’s communication journey.
Stepping Into AAC
The program is divided into 20 parts with the intention to complete one part a week. There are activities, resources and videos to guide you along the way. Our hope is that you find support and inspiration whether you are just getting started with AAC, seeking momentum or looking to learn more about AAC.
Despite the growing amount of AAC information that is available, parents of children with very limited language struggle to support their children’s communicative development. Stepping Into AAC is a program to support your individual’s communication journey.
Stepping Into AAC
The program is divided into 20 parts with the intention to complete one part a week. There are activities, resources and videos to guide you along the way. Our hope is that you find support and inspiration whether you are just getting started with AAC, seeking momentum or looking to learn more about AAC.
Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.
Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.
Robert Carson, MD, PhD at Vanderbilt University discusses his research and findings on characterization and treatment of abnormal movements in Angelman syndrome.
Robert Carson, MD, PhD at Vanderbilt University discusses his research and findings on characterization and treatment of abnormal movements in Angelman syndrome.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
Jessica Duis, MD, MS discusses many aspects of caring for teens and adults with AS. Topics covered are: transition of care, routine, nutrition, behavior, sleep and mobility.
Jessica Duis, MD, MS discusses many aspects of caring for teens and adults with AS. Topics covered are: transition of care, routine, nutrition, behavior, sleep and mobility.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
A collection of videos focusing on various aspects of life for adults with Angelman syndrome. The playlist includes expert discussions on topics such as health management, independent living, employment opportunities, and social engagement for adults with Angelman syndrome. The series aims to provide valuable insights and resources for caregivers, families, and individuals seeking to enhance the quality of life for adults affected by this condition.
This presentation focuses on integrating symptom and treatment checklists into Individualized Education Programs (IEPs) for individuals with Angelman Syndrome (AS). It provides guidance on identifying specific symptoms, selecting appropriate treatments, and effectively incorporating these elements into IEPs to enhance educational outcomes for students with AS. The session aims to equip families and educators with practical tools to tailor educational plans that address the unique needs associated with Angelman Syndrome.
This presentation focuses on integrating symptom and treatment checklists into Individualized Education Programs (IEPs) for individuals with Angelman Syndrome (AS). It provides guidance on identifying specific symptoms, selecting appropriate treatments, and effectively incorporating these elements into IEPs to enhance educational outcomes for students with AS. The session aims to equip families and educators with practical tools to tailor educational plans that address the unique needs associated with Angelman Syndrome.
Robin Wilkerson joins Amanda to talk about the ASF Angel Guardian program and how friends and family members can all have a role in caring for their individual with AS.
Robin Wilkerson joins Amanda to talk about the ASF Angel Guardian program and how friends and family members can all have a role in caring for their individual with AS.
Kate Ahern discusses strategies for fostering a supportive community among users of Augmentative and Alternative Communication (AAC) devices. She emphasizes the importance of creating environments where AAC users can connect, share experiences, and support each other’s communication journeys. The presentation provides insights into building inclusive communities that empower AAC users to express themselves fully.
Kate Ahern discusses strategies for fostering a supportive community among users of Augmentative and Alternative Communication (AAC) devices. She emphasizes the importance of creating environments where AAC users can connect, share experiences, and support each other’s communication journeys. The presentation provides insights into building inclusive communities that empower AAC users to express themselves fully.
Features a collection of videos that delve into the latest scientific research and developments related to Angelman syndrome. The playlist includes presentations from experts in the field, covering topics such as genetic studies, clinical trials, and innovative therapies aimed at understanding and treating Angelman syndrome. This resource serves as a valuable tool for families, caregivers, and professionals seeking to stay informed about advancements in research and the potential implications for individuals affected by Angelman syndrome.
Features a collection of videos that delve into the latest scientific research and developments related to Angelman syndrome. The playlist includes presentations from experts in the field, covering topics such as genetic studies, clinical trials, and innovative therapies aimed at understanding and treating Angelman syndrome. This resource serves as a valuable tool for families, caregivers, and professionals seeking to stay informed about advancements in research and the potential implications for individuals affected by Angelman syndrome.
