Resources

Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.

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Resources

Behavior | Seizures
Video
ABC's of LGIT

Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.

Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.

Seizures
Video
Abnormal Movements in AS

Robert Carson, MD, PhD at Vanderbilt University discusses his research and findings on characterization and treatment of abnormal movements in Angelman syndrome.

Robert Carson, MD, PhD at Vanderbilt University discusses his research and findings on characterization and treatment of abnormal movements in Angelman syndrome.

Medical | Seizures
Document
Clinical Care Toolkit

The Angelman Syndrome Clinical Care Toolkit has been developed in close collaboration with leading medical professionals through the LADDER Learning Network, researchers, and the ASF. It is based on the most current scientific evidence and clinical experience, providing a trusted resource that can support and empower health-care providers in their care of individuals with Angelman syndrome. Included are:

Overall Standards of Care, Seizure Treatment Guidelines, Management of Nonconvulsive Status Epilepticus, Myoclonus in AS, General Anesthesia Best Practices, Physical Therapy and Occupational Therapy, LADDER Learning Network

The Angelman Syndrome Clinical Care Toolkit has been developed in close collaboration with leading medical professionals through the LADDER Learning Network, researchers, and the ASF. It is based on the most current scientific evidence and clinical experience, providing a trusted resource that can support and empower health-care providers in their care of individuals with Angelman syndrome. Included are:

Overall Standards of Care, Seizure Treatment Guidelines, Management of Nonconvulsive Status Epilepticus, Myoclonus in AS, General Anesthesia Best Practices, Physical Therapy and Occupational Therapy, LADDER Learning Network

Behavior | Seizures
Video
Diet and Angelman syndrome

Features registered dietitian Heidi Pfeifer, RD, from the Angelman Syndrome Clinic at MassGeneral in Boston. She discusses various dietary approaches commonly followed by individuals with Angelman syndrome, including the ketogenic diet, low glycemic index treatment, and modified Atkins diet. Heidi explains how these diets can impact seizure control and overall health, providing insights into their implementation and potential benefits. The presentation aims to inform caregivers and healthcare providers about nutritional strategies to support individuals with Angelman syndrome.

Features registered dietitian Heidi Pfeifer, RD, from the Angelman Syndrome Clinic at MassGeneral in Boston. She discusses various dietary approaches commonly followed by individuals with Angelman syndrome, including the ketogenic diet, low glycemic index treatment, and modified Atkins diet. Heidi explains how these diets can impact seizure control and overall health, providing insights into their implementation and potential benefits. The presentation aims to inform caregivers and healthcare providers about nutritional strategies to support individuals with Angelman syndrome.

Behavior | Seizures
Video
Diet and Supplements

Features Dr. Jessica Duis, a specialist in Angelman syndrome, discussing the role of diet and nutritional supplements in managing the condition. She explores various dietary interventions, such as the ketogenic diet, and their potential benefits for individuals with Angelman syndrome. Dr. Duis also addresses the use of specific supplements, providing insights into how they may support overall health and symptom management. The presentation aims to inform caregivers and healthcare providers about nutritional strategies that can complement traditional therapies.

Features Dr. Jessica Duis, a specialist in Angelman syndrome, discussing the role of diet and nutritional supplements in managing the condition. She explores various dietary interventions, such as the ketogenic diet, and their potential benefits for individuals with Angelman syndrome. Dr. Duis also addresses the use of specific supplements, providing insights into how they may support overall health and symptom management. The presentation aims to inform caregivers and healthcare providers about nutritional strategies that can complement traditional therapies.

Seizures
Video
Diet YouTube Playlist

A collection of videos focusing on dietary considerations for individuals with Angelman syndrome. The playlist includes expert discussions on various nutritional strategies, such as the ketogenic diet, low glycemic index treatment, and modified Atkins diet, aiming to inform caregivers and healthcare providers about effective dietary interventions to support health and manage symptoms associated with Angelman syndrome.

A collection of videos focusing on dietary considerations for individuals with Angelman syndrome. The playlist includes expert discussions on various nutritional strategies, such as the ketogenic diet, low glycemic index treatment, and modified Atkins diet, aiming to inform caregivers and healthcare providers about effective dietary interventions to support health and manage symptoms associated with Angelman syndrome.