The ASF Clinical Network is a collaboration of providers, single-specialty practices, and multi-specialty clinics with experience caring for the Angelman syndrome (AS) community, united by a mutual goal to connect families impacted by AS with access to not only comprehensive medical care, but also the valuable research, education, and community resources that they need to thrive throughout their lives.
To locate an ASF Clinic or provider near you, please use the search tools below.
ASF Clinics
Find comprehensive medical expertise at an ASF clinic. Our clinics provide a multi- disciplinary setting where families can access a variety of professionals who specialize in Angelman syndrome all in one place and ideally, one visit!
Search the database below to find clinics, centers of excellence, clinical trial sites, and more.
ASF Provider Registry
Traveling to an ASF Clinic is not always possible or necessary. The Provider Registry includes providers and single-specialty practices (such as a dentist office) to help connect families with local care.
Find community doctors, therapists, and experts who have been recommended to the ASF and reviewed.
ASF Clinical Network
Through its global network of expert-staffed patient-powered data, the ASF clinical network is dedicated to improving quality of life, empowering families, and transforming the future of AS care—all while paving the way for the ultimate goal: The cure.
*PLEASE NOTE* The Angelman Syndrome Foundation is not a clinical health provider or medical system. The clinics, medical providers, and practices listed on the registries below do not work for the ASF. They are individual providers who operate under their own practices or hospital systems, and all questions about policies, procedures, or scheduled visits should be directed to their designated representatives.
What to Expect
Access to specialized, high-quality health care is essential for individuals with AS to thrive. Therefore, anyone with an Angelman syndrome is invited to visit an ASF Clinic. Please remember each ASF Clinic is multidisciplinary, yet each has its own unique capabilities. Click a site below to find more details and what to expect.
An ASF Clinic is a multi-disciplinary institution that is recognized by the ASF for providing highly knowledgeable, specialized care for individuals with Angelman syndrome.
An ASF Center of Excellence is a multi-disciplinary institution within the ASF Clinical Network that is recognized by the foundation for providing the highest level of comprehensive care, clinical leadership, and expertise in Angelman syndrome.
ASF Providers are specialty practices who provide exceptional healthcare but do not practice within one of the established ASF Clinics. These providers have expertise in a single clinical specialty (like family care, genetics, neurology, or dentistry). They are not multidisciplinary clinics.
Specialty Providers have expertise in a single clinical specialty (like family care, genetics, neurology, or dentistry). They have been recognized by the ASF for providing highly knowledgeable care to individuals with Angelman syndrome or other closely related neurodevelopmental disorders.
The ASF Provider Registry was designed to help families find exceptional healthcare, when visiting an ASF Clinic is not possible or necessary.
We believe access to specialized, high-quality health care is essential for individuals with AS to thrive. Therefore, anyone with an Angelman syndrome diagnosis is invited to visit the providers or clinics within our registries.
Each ASF Clinic is multidisciplinary, yet each has its own unique capabilities. Individuals have access to a variety of professionals all specializing in AS, including but not limited to Clinical Geneticists, Neurologists, Psychiatrists, Psychologists, Speech Language Pathologists, Physical/Occupational Therapists, Genetic Counselors, Social Workers and Nutritionists.
On the other hand, providers and specialty practices in the Provider Registry operate within one specific field or discipline – such as a family care practice, therapist group, dental clinic, or physical therapy office that sees Angelman syndrome or other related neurodevelopmental disorders. Caregivers are encouraged to reach out to coordinators or care teams listed in our registries directly to determine details about what sort of services are offered.
By partnering with leading medical and research institutions across the country, we founded ASF Clinics to provide individuals with AS, from birth through adulthood, the comprehensive medical care they need throughout their lifetime. Each clinic offers specialized care and expertise that families and individuals can take back to their team at home.
To schedule an appointment, use the search tools to locate a clinic or provider. Each clinic has specific contact information listed for making an appointment.
Caregivers are encouraged to contact coordinators or care teams directly to determine details like travel, fees, and insurance requirements to determine if a clinic or provider is the right fit for them.
If you need help determining which ASF Clinic is best for your loved one at this time, or if you need assistance making an appointment, we’re happy to assist you. Contact clinics@angelman.org.
The ASF Clinical Network is a global collection of independently operated healthcare teams, so billing procedures and healthcare coverage will vary. We encourage caregivers to reach out directly to clinics or providers with questions about insurance coverage, HSA/FSA reimbursement, and payment plan options.
We believe that cost should never be a barrier to medical care, so please contact ASF if financial hardship is preventing you from visiting an ASF clinic. We are happy to assist with finding resources to access the care you and your loved ones need.
Clinical trials are a type of research designed to answer specific medical questions such as, is this treatment safe for patients or how well does the treatment work? The research follows a very specific process and involves testing the new drugs, medicines, or devices on real people. If you’re interested in participating, you can find the trial and contact information on the clinic location pages (not all clinics participate in all trials). You may also visit the Clinical Trials page, to find clinical trials and see the list of locations. You may also review the Frequently Asked Questions about Angelman Clinical Trials.
We know your first visit to a new ASF Clinic can be overwhelming. We want you to have the best possible experience and for you to maximize ALL the benefits ASF Clinics have to offer. Please review the Angelman Syndrome Initial Clinic Checklist for some general information on how to properly prepare for your first visit, including what documents you need to have prepared.
The ASF Clinical Network is a global collection of independently operated healthcare teams, and each clinic operates differently. Feel free to reach out to the clinic you will visit for further suggestions.
Clinic Head
Clinic Head
ASF’s Provider Referral Program is designed to connect families impacted by Angelman syndrome with valuable community resources, support, and providers treating AS. Whether you’re newly diagnosed or seeking care for specific challenges, this program aims to provide families with additional clinicians, therapists, dentists, etc., outside the ASF Clinical Network.
To create an additional designation beyond “ASF Clinics” or “Centers of Excellence” (COE) that allows for recognition of single-specialty providers and practices with expertise in AS and/or closely related neurogenetic conditions in order to:
ASF Providers are specialty practices who provide exceptional healthcare but do not practice within one of the established ASF Clinics. These providers have expertise in a single clinical specialty (like family care, genetics, neurology, or dentistry). They are not multidisciplinary clinics.
These specialty providers have been nominated by a caregiver/family member, member of the AS Clinical Community, or self-nominated for review by the ASF Medical Advisory Council. They are recognized by the ASF for providing highly knowledgeable care to individuals with Angelman syndrome or other closely related neurodevelopmental disorders.
The ASF Provider Registry was designed to help families find exceptional healthcare, when visiting an ASF Clinic is not possible or necessary.
ASF Provider are first nominated by a caregiver/family, LLN member, or the provider themselves for review. Each nomination is given an initial check by the ASF Director of Clinical Programs for completeness and nominees who are aligned with the goals of the registry program are sent an official application form that gathers information necessary for approval by the Medical Advisory Council.
Once approved for the Provider Registry, each provider or practice is reassessed by an ASF representative every two years to ensure that they still operating, are in good standing with their licensure board(s), the provider/practice is actively seeing AS patients, and the affiliation remains mutually beneficial.
We believe access to specialized, high-quality health care is essential for individuals with AS to thrive. Therefore, anyone with an Angelman syndrome diagnosis is invited to visit the providers or clinics within our registries.
Each ASF Clinic is completely comprehensive, yet each has its own unique capabilities. Individuals have access to a variety of professionals all specializing in AS, including but not limited to Clinical Geneticists, Neurologists, Psychiatrists, Psychologists, Speech Language Pathologists, Physical/Occupational Therapists, Genetic Counselors, Social Workers and Nutritionists.
On the other hand, ASF Providers and specialty practices operate within one specific field or discipline – such as a family care practice, therapist group, dental clinic, or physical therapy office that sees AS or other related NDD disorders. Caregivers are encouraged to reach out to coordinators or care teams listed in our registries directly to determine details about what sort of services are offered.
To schedule an appointment, use the search tools to locate a clinic or provider in your region. Each clinic has specific contact information listed for making an appointment.
Caregivers are encouraged to contact coordinators or care teams directly to determine details like travel, fees, and insurance requirements to determine if a clinic or provider is the right fit for them.
If you need help determining which ASF Clinic is best for your loved one at this time, or if you need assistance making an appointment, we’re happy to assist you. Contact clinics@angelman.org.
The ASF Clinical Network is a global collection of independently operated healthcare teams, so billing procedures and healthcare coverage will vary. We encourage caregivers to reach out directly to clinics or providers with questions about insurance coverage, HSA/FSA reimbursement, and payment plan options.
We believe that cost should never be a barrier to medical care, so please contact ASF if financial hardship is preventing you from visiting an ASF clinic. We are happy to assist with finding resources to access the care you and your loved ones need.
The Angelman Syndrome Foundation operates internationally to support clinics and providers that go above and beyond to facilitate access to high quality evidence-based medical care that is customized to the needs of their patients. Please use the tool below to search for an ASF Clinic in your area.
Clinic Head
Clinic Head
Director of Developmental & Behavioral Pediatrics, ASF Clinic Director
Director of Developmental & Behavioral Pediatrics, ASF Clinic Director
Clinic Director
Clinic Director
