About

Our Mission

The mission of the Angelman Syndrome Foundation is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families and other concerned parties. We exist to give all of them a reason to smile, with the ultimate goal of finding a cure.

 

The ASF Board of Directors has developed a strategic plan to help the ASF achieve its goals and objectives for the future. The ASF strategic plan is centered around three areas: Support for Angelman families, Commitment to Research and Supporting the ASF AS Clinics. Focusing funding and energies in these 3 areas will not only improve the lives of those living with Angelman syndrome now and in the future.

Three parts of a circle with the 3 areas of focus: Treat and cure AS, support Angelman families and Strengthen the ASF AS Clinic network
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Four-Star Charity

Charity Navigator logo
The Angelman Syndrome Foundation has received a 4-Star rating from Charity Navigator for demonstrating strong financial health and commitment to accountability and transparency. Four-star is Charity Navigator’s highest possible rating and indicates that the ASF adheres to sector best practices, executes its mission in a financially efficient way and exceeds industry standards and outperforms most charities in our area of work.  See the Transparency section for financial reports.

Meet Our Staff

Amanda Moore Amanda Moore Indianapolis, IN
Amanda Moore CEO

Amanda Moore became CEO of the the ASF in 2019. Prior to that, she was the Director of Leadership Development, Diversity and Inclusion and Global Strategies at the YMCA of Greater Indianapolis where she worked for over eighteen years. Amanda earned her Masters in Leadership Development as well as a Certificate in Fundraising from the Indiana University School of Philanthropy.

Amanda and her family live in Indianapolis, Indiana. Amanda’s husband, Adam, is a nurse and an amazing artist. In 2015 Amanda and Adam adopted twin boys, Jackson and Baden. Jackson was diagnosed with Angelman syndrome in January of 2017 and since then Amanda has made it her mission to be an advocate for all people with Angelman syndrome.

amoore@angelman.org

Eileen Braun Eileen Braun Manistee, MI
Eileen Braun Director of Operations

Eileen Braun is a graduate of Mayo School of Health Related Sciences, Rochester, MN. Prior to her career with ASF Eileen worked at the Mayo Clinic, University of Iowa Hospitals and Clinics, Bronson Methodist Hospital (Kalamazoo, MI) and Loyola University Medical Center. She began her fundraising career with ASF in 1998 and has worked for the ASF since 2001.

Eileen served as the Executive Director of the ASF for sixteen years before transitioning to the Director of Operations. She and her husband, Tom, have four children, the oldest, Kaitlin, has Angelman syndrome.

ebraun@angelman.org

Kitty Murphy Kitty Murphy Lisle, IL
Kitty Murphy Special Events Coordinator

Kitty Murphy comes to the Angelman Syndrome Foundation with over a decade of non-profit event-planning and fundraising experience. Prior to her career with ASF, Kitty coordinated many large community events working as a director at two mega-churches in Naperville IL. Kitty is also very active locally in her community. For more than seven years, Kitty has been involved in the Chamber on many event committees, Board of Directors for 4 years and she served as Chairman of the Board in 2014. Kitty has been appointed to the Planning and Zoning Commission for over 10 years and was recently appointed to a special events board for her hometown of Lisle, IL.

Kitty looks forward to using her talents to grow support for the AS community through events and fundraising. Kitty has three grown daughters who are all successfully achieving their career goals in business, family law and occupational therapy.

kmurphy@angelman.org

Elizabeth Jalazo Elizabeth Jalazo, MD Chapel Hill, NC
Elizabeth Jalazo, MD Medical Officer

Elizabeth is a board certified pediatrician who served on the ASF Board of Directors before becoming Director of Clinical Integration for the ASF in 2019. Elizabeth and her husband Matt are parents to Evelyn, diagnosed with AS, and her siblings Sloane and Charlie.

Elizabeth and Matt became involved with the ASF in 2015 when Evelyn was diagnosed. They were the coordinators of the ASF Walk in Washington DC before moving to North Carolina.

CMO_15qNetwork@angelman.org

Julie Bondelli Julie Bondelli Carol Stream, IL
Julie Bondelli Data Entry/Administrative Assistant

Julie is responsible for maintaining the database through data management, analysis and reporting. She also handles requests for information and data from AS families and AS resources by answering phones and responding to issues that come her way. Julie comes to the ASF with over two decades of working in the non-profit sector. She has extensive experience in donor database management, in addition to a wide range of administrative and office support responsibilities. She lives in Carol Stream with her three daughters.

jbondelli@angelman.org

Caryn Kolodziej Caryn Kolodziej Plainfield, IL
Caryn Kolodziej Administrative Assistant

Caryn can be found at ASF taking care of donor acknowledgements, data entry and reports. In addition, Caryn is actively involved with ASF’s development efforts. Caryn comes to the Angelman Syndrome Foundation with over 8 years of experience in event planning, fundraising and database management with a children’s museum in Naperville, IL. Prior to working in the non-profit sector, Caryn worked for 17 years in the cable television industry as a Customer Service Manager, making her a perfect match for the ASF. Caryn and her husband have a son and daughter.

ckolodziej@angelman.org

Kathryn Ely, her husband Matt with children John Allen, Amelia and Stetson Kathryn Ely Canton, GA
Kathryn Ely Family Support Advocate

Kathryn and her husband, Matt, and live in metro Atlanta, GA. Their son, Stetson, was diagnosed with AS when he was 17 months old. After his diagnosis, the Ely's became heavily involved with ASF. They host a golf tournament, Stetson’s Chip Away @ AS, each year in honor of Stetson and coordinated the ASF Walk in Atlanta for four years. As a family they are committed to raising awareness of Angelman syndrome and funds for research. The Ely's have utilized the ASF AS clinics and ASF resources around the country from the clinics at Mass General, Vanderbilt, and UNC, along with visiting other specialists.
In July 2019, they welcomed Stetson’s brother, John Allen into the world and baby sister, Amelia in January 2021.

kely@angelman.org

Amy Friel and family on the beach Amy Friel Orland Park, IL
Amy Friel Web and Marketing Communication

Amy Friel is a contractor, but still an integral part of the ASF and our team since 2014, managing and coordinating the ASF’s marketing communication activities, including our website, angelman.org. Amy’s focus is helping the ASF serve and communicate with the Angelman community through web, social media, e-newsletters and printed pieces.

Amy lives in a southwest suburb of Chicago with her husband and two daughters. In her free time, Amy enjoys photography, scrapbooking and traveling. Amy’s favorite part of working with the ASF is being inspired every day by its creative and tireless supporters and their work to spread awareness and make a difference in people’s lives.

webmaster@angelman.org

Liz Thompson and Cami Liz Thompson Colorado Springs, CO
Liz Thompson Development and Grants

Liz is longtime nonprofit enthusiast, military spouse, and mother to 3 little girls including Cami, age 4, who lives with Angelman syndrome. With nearly 20 years in nonprofit and fundraising experience, Liz has served the roles of volunteer, program manager, area manager, development director, and executive director at a variety of nonprofits serving locally, regionally, and nationally. In 2019, Cami’s diagnosis quickly diverted Liz’s passions to supporting those with Angelman syndrome. Liz began raising awareness through The CAMI Project on Facebook and Instagram, became Colorado Springs’ ASF Walk Coordinator, and is now supporting ASF’s development efforts by assisting in creating development strategy, grant writing, donor relations, and more.


“Since receiving Cami’s diagnosis, I’ve been truly grateful and inspired by the care, compassion, and commitment within the Angelman syndrome community. I am thrilled to use my experience and skill set to help support all those effected by Angelman syndrome!”

Development@angelman.org

Leah Scott and Family Leah Scott Kansas City, KS
Leah Scott AS Clinics Support

Leah Scott is a talent acquisition specialist by day and a wrangler of semi-feral, free-range preschoolers by night. Her oldest child, Caden was adopted at birth and diagnosed with Angelman syndrome shortly after his second birthday. Since Caden’s diagnosis, Leah and her husband Bobby have fundraised for ASF, and Leah co-coordinated the 2022 ASF Walk in Olathe, KS.


Leah was blessed with a wicked sense of humor and cursed with insatiable wanderlust. Someday soon she’ll write a book about all the hilariously mortifying things that have happened to her over the years, which will cause readers to simultaneously crack up and melt into the floor from secondhand embarrassment. Leah and Bobby live in the Kansas City metro area with their sons Caden and Sawyer, and one particularly persnickety, geriatric dog, Gizmo.