Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Despite the growing amount of AAC information that is available, parents of children with very limited language struggle to support their children’s communicative development. Stepping Into AAC is a program to support your individual’s communication journey.
Stepping Into AAC
The program is divided into 20 parts with the intention to complete one part a week. There are activities, resources and videos to guide you along the way. Our hope is that you find support and inspiration whether you are just getting started with AAC, seeking momentum or looking to learn more about AAC.
Despite the growing amount of AAC information that is available, parents of children with very limited language struggle to support their children’s communicative development. Stepping Into AAC is a program to support your individual’s communication journey.
Stepping Into AAC
The program is divided into 20 parts with the intention to complete one part a week. There are activities, resources and videos to guide you along the way. Our hope is that you find support and inspiration whether you are just getting started with AAC, seeking momentum or looking to learn more about AAC.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
This series will empower you to take the first steps in building a Future Care Plan for your family. Featuring on-demand webinars, interactive resources, and Q&A opportunities. Complete the series to:
This series will empower you to take the first steps in building a Future Care Plan for your family. Featuring on-demand webinars, interactive resources, and Q&A opportunities. Complete the series to:
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
Introducing AS Grows Up
In January 2025, ASF published an Adult Survey. Caregivers and family members of adults with AS shared their realities including: their victories, challenges, and urgent gaps in resources and support. Now, we are taking bold action to close the gaps in essential support and expand the vital resources and services families desperately need.
Tiny Superheroes created the Angelman Strong Badge as a symbol of strength, identity, and belonging for for the Angelman community. Visit their website to purchase a cape, the Angelman Strong patch, and many others. Use promo code ANGELMANSTRONG for 10% off.
Tiny Superheroes created the Angelman Strong Badge as a symbol of strength, identity, and belonging for for the Angelman community. Visit their website to purchase a cape, the Angelman Strong patch, and many others. Use promo code ANGELMANSTRONG for 10% off.
Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.
Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.
Robert Carson, MD, PhD at Vanderbilt University discusses his research and findings on characterization and treatment of abnormal movements in Angelman syndrome.
Robert Carson, MD, PhD at Vanderbilt University discusses his research and findings on characterization and treatment of abnormal movements in Angelman syndrome.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
Jessica Duis, MD, MS discusses many aspects of caring for teens and adults with AS. Topics covered are: transition of care, routine, nutrition, behavior, sleep and mobility.
Jessica Duis, MD, MS discusses many aspects of caring for teens and adults with AS. Topics covered are: transition of care, routine, nutrition, behavior, sleep and mobility.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
ASF gives families a place to begin—offering support, reassurance, and real-life examples that show what is possible. We offer ideas that are already tested by others, families don’t have to start from scratch when planning for the future.
Adult Housing Champions are caregivers who have navigated one of these situations for their loved one and are available to guide and share their experience with others.
