Events

Throughout the year, the Angelman Syndrome Foundation hosts, participates in and receives support from events across the country. Below find a list of upcoming events.

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Upcoming Events

Oct
09
Thu
Community Webinar with MavriX Bio
October 9, 2025
1:00 pm

ASF and FAST will host a webinar with representatives from MavriX Bio to provide a summary of their Phase 1/2 Clinical Trial (ASCEND-AS) design, requirements, and enrollment criteria.

Oct
12
Sun
Bank of America Chicago Marathon 2025
October 12, 2025
Chicago, IL

Support the Windy City Angels running in the Bank of America Chicago Marathon!
*Our 2025 team is now filled.

Feb
15
Sun
International Angelman Day
February 15, 2026

Since 2013, International Angelman Day has been the driving force in uniting AS families and patient organizations around the world for a common purpose – raising awareness of Angelman syndrome. The day is observed by over 50 charitable/support organizations based in over 40 countries around the world.

Mar
02
Mon
Congressional Advocacy Day
March 2, 2026
- March 3, 2026
Washington, DC

Angelman syndrome advocates from around the United States meet in Washington, D.C. on Angelman Syndrome Congressional Advocacy Day. Advocates representing their states meet with their Members of Congress to educate their representatives on their personal experiences with Angelman syndrome to accomplish one of our inaugural goals of building relationships and bringing awareness to AS.

May
16
Sat
Angelman Strong
May 16, 2026
In most locations

Previous Events

Sep
25
Thu
Angelman Strong Interest Webinar
September 25, 2025
8:00 pm
Are you interested in coordinating an Angelman Strong Event in your area?  Join us to learn how to get started, ask questions and find out how we can support you.
Sep
21
Sun
Maddie's Mission 4th Annual Block Party
September 21, 2025
Mission Hills, KS

Join the block party at The Jewish Community Center.

Sep
20
Sat
Granville Angels Cornhole Tournament
September 20, 2025
Newark Station, OH

Granville Angels Foundation is hosting their 3rd Annual Cornhole For a Cause tournament at The Yard at Newark Station. Proceeds benefit the ASF, FAST and local initiatives that support those living with Angelman syndrome.

Sep
01
Mon
Northeast Kansas Annual Tractor Cruise
September 1, 2025
Everest, KS

Continuing a Labor Day tradition in honor of Keith Olsen at this year’s tractor cruise.  Registration is 8:30-10:15 and we will take off at 10:30. It is $40/tractor to participate, or if you are unable to participate and still want to donate we will be taking free will donations!

Aug
20
Wed
Adult Caregiver Happy Hour
August 20, 2025
8:30 pm

Join us for a much requested Adult Caregiver Happy Hour!

Connect with fellow adult caregivers, share stories, build community, and enjoy a few laughs along the way.

Register to attend