Throughout the year, the Angelman Syndrome Foundation hosts, participates in and receives support from events across the country. Below find a list of upcoming events.
Partner with the ASF to get your name in front of the Angelman Community at nationwide events.
On this global day of doing good, consider donating, creating an online fundraiser, random acts of kindness or sharing your time through volunteerism. This year, Giving Tuesday donations to the ASF will be matched up to $50,000! Help us raise $100,000 in one day.
Since 2013, International Angelman Day has been the driving force in uniting AS families and patient organizations around the world for a common purpose – raising awareness of Angelman syndrome. The day is observed by over 50 charitable/support organizations based in over 40 countries around the world.
Angelman syndrome advocates from around the United States meet in Washington, D.C. on Angelman Syndrome Congressional Advocacy Day. Advocates representing their states meet with their Members of Congress to educate their representatives on their personal experiences with Angelman syndrome to accomplish one of our inaugural goals of building relationships and bringing awareness to AS.
This event takes place every other year in a different location so that families from all over the US can have the opportunity to attend. The conference unites a diverse group of people including those with Angelman syndrome, their families, siblings, caregivers, clinicians, therapists, researchers, and friends.
Throughout the conference, attendees attend workshops, seminars, and presentations that cover a spectrum of topics, providing valuable insights into what we know about AS, how best to care for individuals living with AS throughout their lifetime, therapeutic approaches, and practical strategies. Outside of education, attendees will experience community, connection, and celebration.
Take pictures and interact with 12 of your favorite superheroes and princesses. Stay for food and a DJ dance party AND magic show.
Enter to win an iPad for your individual with AS in time for the holidays.
Support the Windy City Angels running in the Bank of America Chicago Marathon!
*Our 2025 team is now filled.
ASF and FAST will host a webinar with representatives from MavriX Bio to provide a summary of their Phase 1/2 Clinical Trial (ASCEND-AS) design, requirements, and enrollment criteria.