Events

Throughout the year, the Angelman Syndrome Foundation hosts, participates in and receives support from events across the country. Below find a list of upcoming events.

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Upcoming Events

Jul
29
Tue
Focus Group: Healthcare Transition of Care Toolkit
July 29, 2025
Thanks to a grant from the Child Neurology Foundation, the ASF has created a Healthcare Transition of Care Toolkit. This tool will help empower parents and caregivers and guide providers through the conversations necessary to transition a loved one with Angelman syndrome to adult medical care.
We are conducting a focus group to review a newly created Healthcare Transition of Care Toolkit.
Aug
02
Sat
Jack’s Tap 3rd Annual Golf Outing for Angelman Syndrome
August 2, 2025
McNabb, IL

The Jack’s Tap 3rd Annual Golf Outing for Angelman Syndrome will take place at Edgewood Park Golf Club in McNabb, IL. Proceeds benefit the Angelman Syndrome Foundation. Jason and Lindsey Vance hold the event in honor of their son, Logan.

Sep
21
Sun
Maddie's Mission 4th Annual Block Party
September 21, 2025
Mission Hills, KS

Join the block party at The Jewish Community Center.

Oct
12
Sun
Bank of America Chicago Marathon 2025
October 12, 2025
Chicago, IL

Support the Windy City Angels running in the Bank of America Chicago Marathon!
*Our 2025 team is now filled.

Feb
15
Sun
International Angelman Day
February 15, 2026

Since 2013, International Angelman Day has been the driving force in uniting AS families and patient organizations around the world for a common purpose – raising awareness of Angelman syndrome. The day is observed by over 50 charitable/support organizations based in over 40 countries around the world.

Previous Events

Jul
21
Mon
ASF/Dup15q Alliance Research Symposium
July 21, 2025
- July 23, 2025
Indianapolis, IN

The annual research symposium is a chance for leading researchers, scientists and doctors to discuss the latest research in the world of AS.

Jul
11
Fri
Angelman Cornhole Cup
July 11, 2025
- July 12, 2025
Salem, OR
All skill levels are welcome to compete in a cornhole tournament that will run for two days during the Marion County Fair. Registration is open on Scoreholio.
Jul
01
Tue
HundredX Feeback Program
July 1, 2025
- August 5, 2025

Each time you share a quality brand opinion with HundredXâ„¢, up to $1.60 goes supports programs like Angelman research funding, Counseling Services, IEP & Behavior Consultations, Sibling Programs and much more!!

Jun
21
Sat
Rooney’s Marathon Fundraiser
June 21, 2025
12:00 pm
Quincy, MA

Team AngelMaggie is running Chicago Marathon for the Angelman Syndrome Foundation in October. Caitlin, Chris and Terence will be running in honor of Caitlin’s daughter Maggie.

Come support the team at Waterclub Marina Bay. Enjoy drinks, raffles and music by For Folks Sake!

Jun
21
Sat
Go Gus Go Golf Outing
June 21, 2025
Linwood, MI

It’s the 4th annual Go, Gus, Go Golf Outing and fundraising event! Golf, silent auction, games, prizes and COMMUNITY at Maple Leaf Golf Club.