The ASF Clinical Network is a collaboration of providers, single-specialty practices, and multi-specialty clinics with experience caring for the Angelman syndrome (AS) community, united by a mutual goal to connect families impacted by AS with access to not only comprehensive medical care, but also the valuable research, education, and community resources that they need to thrive throughout their lives.
To locate an ASF Clinic or provider near you, please use the search tools below.
ASF Clinics
Find comprehensive medical expertise at an ASF clinic. Our clinics provide a multi- disciplinary setting where families can access a variety of professionals who specialize in Angelman syndrome all in one place and ideally, one visit!
Search the database below to find clinics, centers of excellence, clinical trial sites, and more.
ASF Provider Registry
Traveling to an ASF Clinic is not always possible or necessary. The Provider Registry includes providers and single-specialty practices (such as a dentist office) to help connect families with local care.
Find community doctors, therapists, and experts who have been recommended to the ASF and reviewed.
ASF Clinical Network
Through its global network of expert-staffed patient-powered data, the ASF clinical network is dedicated to improving quality of life, empowering families, and transforming the future of AS care—all while paving the way for the ultimate goal: The cure.
*PLEASE NOTE* The Angelman Syndrome Foundation is not a clinical health provider or medical system. The clinics, medical providers, and practices listed on the registries below do not work for the ASF. They are individual providers who operate under their own practices or hospital systems, and all questions about policies, procedures, or scheduled visits should be directed to their designated representatives.
What to Expect
Access to specialized, high-quality health care is essential for individuals with AS to thrive. Therefore, anyone with an Angelman syndrome is invited to visit an ASF Clinic. Please remember each ASF Clinic is multidisciplinary, yet each has its own unique capabilities. Click a site below to find more details and what to expect.
An ASF individual or specialty practice is a group of specialized physicians who work at one location and see one type of specialty (such as a family care practice, therapist group, dental clinic, or physical therapy office) recognized by the ASF for their interest and expertise in AS or other closely related Neurodevelopmental Diseases (NDD) who have been nominated by a caregiver/family member, member of the AS Clinical Community, or self-nominated for review by the ASF Medical Advisory Council (MAC). A Provider or Specialty Practice is not a multidisciplinary clinic. Multidisciplinary clinics should go through the New Clinic Application process.
We believe access to specialized, high-quality health care is essential for individuals with AS to thrive. Therefore, anyone with an Angelman syndrome diagnosis is invited to visit the providers or clinics within our registries.
Caregivers are encouraged to reach out to coordinators or care teams listed in our registries directly to determine details like travel, fees, and insurance requirements to determine if a clinic or provider is the right fit for them.
Each ASF Clinic is multidisciplinary, yet each has its own unique capabilities. Individuals have access to a variety of professionals all specializing in AS, including but not limited to Clinical Geneticists, Neurologists, Psychiatrists, Psychologists, Speech Language Pathologists, Physical/Occupational Therapists, Genetic Counselors, Social Workers and Nutritionists.
On the other hand, providers and specialty practices in the Provider Registry operate within one specific field or discipline – such as a family care practice, therapist group, dental clinic, or physical therapy office that sees AS or other related NDD disorders. Caregivers are encouraged to reach out to coordinators or care teams listed in our registries directly to determine details about what sort of services are offered.
By partnering with leading medical and research institutions across the country, we founded ASF Clinics to provide individuals with AS, from birth through adulthood, the comprehensive medical care they need throughout their lifetime. Each clinic offers specialized care and expertise that families and individuals can take back to their team at home.
To schedule an appointment: Use the search tools to locate a clinic or provider in the area you would like to make your appointment. Each clinic has specific contact information for its location listed. If you need help selecting which ASF Clinic is best for your loved one at this time, or if you need assistance making an appointment, we’re happy to assist you. Please reach out to us at clinics@angelman.org
Yes! Each ASF Clinic or Provider will accept a variety of insurance plans and policies. When you call to get information about scheduling an appointment, be sure to discuss insurance plans and options. ASF never wants finances to stand in the way of medical care, so please reach out to us if financial hardship is a barrier to visiting an ASF Clinic. We can assist you with finding resources to access the care you and your loved ones need.
Clinical trials are a type of research designed to answer specific medical questions such as, is this treatment safe for patients or how well does the treatment work? The research follows a very specific process and involves testing the new drugs, medicines, or devices on real people. If you’re interested in participating, you can find the trial and contact information on the clinic location pages (not all clinics participate in all trials). You may also visit the Clinical Trials page, to find clinical trials and see the list of locations. You may also review the Frequently Asked Questions about Angelman Clinical Trials.
We know your first visit to a new ASF Clinic can be overwhelming. We want you to have the best possible experience and for you to maximize ALL the benefits ASF Clinics have to offer. Please review the Angelman Syndrome Initial Clinic Checklist for some general information on how to properly prepare for your first visit, including what documents you need to have prepared.
ASF Clinics welcome any clinician with experience treating Angelman syndrome to join our network, which is the only comprehensive group of medical professionals in the world specializing in AS. To nominate a provider or individual specialty clinic for the ASF provider registry, please click here. To apply for recognition as a full multi-disciplinary ASF clinic, please click here.
Pediatric Neurologist
Pediatric Neurologist
ASF’s Provider Referral Program is designed to connect families impacted by Angelman syndrome with valuable community resources, support, and providers treating AS. Whether you’re newly diagnosed or seeking care for specific challenges, this program aims to provide families with additional clinicians, therapists, dentists, etc., outside the ASF Clinical Network.
To create an additional designation beyond “ASF Clinics” or “Centers of Excellence” (COE) that allows for recognition of single-specialty providers and practices with expertise in AS and/or closely related neurogenetic conditions in order to:
The individual or specialty practices listed offer one type of specialty (such as a family care practice, therapist group, dental clinic, or physical therapy office) and have experience working with patients with AS or other closely related neurodevelopmental diseases. These providers have been nominated by a caregiver/family member, member of the AS Clinical Community, or self-nominated for review by the ASF Medical Advisory Council (MAC). These provider or specialty practices are not multidisciplinary clinics.
An ASF Provider is an individual clinician recognized by the ASF for their interest and expertise in AS or other closely related Neurodevelopmental Diseases (NDD) and nominated by a caregiver/family member, member of the AS Clinical Community, or self-nominated for review by the ASF Medical Advisory Council (MAC).
ASF Provider Referrals are first nominated by a caregiver/family, LLN member, or the provider themselves for review. Each nomination is given an initial check by the ASF Director of Clinical Programs for completeness and nominees who are aligned with the goals of the registry program are sent an official application form that gathers information necessary for approval by the Medical Advisory Board (MAB).
Completed applications are reviewed by the ASF Director of Clinical Programs for completeness and eligibility and those that meet requirements are passed on to the Medical Advisory Board to review at their quarterly meetings. Those who are approved are welcomed into the ASF Clinical Network and added to the Provider Registry.
Once approved for the Provider Registry, each provider or practice is is reassessed by an ASF representative every two years to ensure that they still operating, are in good standing with their licensure board(s), the provider/practice is actively seeing AS patients, and the affiliation remains mutually beneficial.
We believe access to specialized, high-quality health care is essential for individuals with AS to thrive. Therefore, anyone with an Angelman syndrome diagnosis is invited to visit the providers or clinics within our registries.
Caregivers are encouraged to reach out to coordinators or care teams listed in our registries directly to determine details like travel, fees, and insurance requirements to determine if a clinic or provider is the right fit for them.
Each ASF Clinic is completely comprehensive, yet each has its own unique capabilities. Individuals have access to a variety of professionals all specializing in AS, including but not limited to Clinical Geneticists, Neurologists, Psychiatrists, Psychologists, Speech Language Pathologists, Physical/Occupational Therapists, Genetic Counselors, Social Workers and Nutritionists.
On the other hand, ASF Providers and specialty practices operate within one specific field or discipline – such as a family care practice, therapist group, dental clinic, or physical therapy office that sees AS or other related NDD disorders. Caregivers are encouraged to reach out to coordinators or care teams listed in our registries directly to determine details about what sort of services are offered.
To schedule an appointment: Use the search tools to locate a clinic or provider in the area you would like to make your appointment. Each clinic has specific contact information for its location listed. If you need help selecting which ASF Clinic is best for your loved one at this time, or if you need assistance making an appointment, we’re happy to assist you. Please reach out to us at clinics@angelman.org
Yes! Each ASF Clinic or Provider will accept a variety of insurance plans and policies. When you call to get information about scheduling an appointment, be sure to discuss insurance plans and options. ASF never wants finances to stand in the way of medical care, so please reach out to us if financial hardship is a barrier to visiting an ASF Clinic. We are happy to assist you with finding resources to access the care you and your loved ones need.
To nominate a provider or individual specialty clinic for the ASF provider registry,
please click here.
The Angelman Syndrome Foundation operates internationally to support clinics and providers that go above and beyond to facilitate access to high quality evidence-based medical care that is customized to the needs of their patients. Please use the tool below to search for an ASF Clinic in your area.
Pediatric Neurologist
Pediatric Neurologist
Head of Clinic
Head of Clinic
Pediatric Neurologist
Pediatric Neurologist
