The Angelman Syndrome Foundation is committed to supporting every individual, every step of the way. As individuals with Angelman syndrome age, new needs arise… for housing, programs, community, care, and more.
The ASF Adult Taskforce creates and cultivates resources related to adulthood in Angelman syndrome or transitioning to adulthood.
Questions or Requests
If you have a question or idea for an existing or new resource the team could look into, contact Robin Wilkerson robin.r.wilkerson@gmail.com.
Articles, Checklists & Planning Tools
Facility Tour Checklist
Use the tour checklist for tours of day programs and long-term care facilities.
Comprehensive Care Binder
Download the customizable binder. Helpful for every day and transition of care.
ASF Family Champions with Adults
The ASF Family Champions are family members who have volunteered to be available to other families to share their knowledge, experience and lend an ear. There is a group of Champions who are parents to adults with AS. These families are a great resource for questions, concerns and advice on various aspects of adults with AS transitioning and thriving.
See the list on the ASF Family Champions page and reach out to one today.
Receive Emails
Complete the Contact Registry to receive emails about events, resources and news.
Receive Texts
Receive texts about resources available for adults. Use the form or text ADULT to 833-456-3193.
Recordings of Webinars & Meetings
Adulthood Playlist
See the Adulthood Playlist on YouTube for recordings of webinars and ASF Conference sessions dedicated to various topics on Adulthood in AS:
- Transitioning to adulthood
- Housing options
- Care providers
- Financial Planning
- Health concerns and more
Financial Planning Series
The Adulthood Playlist and Long-Term Planning playlists include a series of videos on financial and long-term planning for special needs futures.
1. Overview
2. Government Benefits
3. Legal
4. ABLE Act
5. Retiring for Three
6. Financial & Long-term Planning Q&A
Angel Guardians & Adult Siblings
These groups meet a few times a year. These meetings are not only for parents and siblings, but also extended family members, neighbors or friends who are involved in the care of an adult with AS.
Watch a video to learn about the program.
- Connect with other care givers
- Learn about available resources
- Hear from experts
- Work toward making plans for long-term care for your loved one
Next meeting: May 7, 2025 at 8pm EST
Resources through The ARC
Start planning now and you can make changes as your child ages and grows. The tool helps you express future wishes, plan for paying for needs, where to live and more.
Free Webinars
The Arc offers free webinars on a variety of topics. See the full list of archived webinars for descriptions and presentation slides.
Supporting People with I/DD to Identify Appropriate Housing
Grief and Loss in the Lives of People with Intellectual and Developmental Disabilities
Aging and I/DD: Planning for Growing Older
Breaking Up is Hard to Do: Divorce and Families that Include a Child with I/DD
Getting There: Including Transportation in a Future Plan
SibTips Webinar: Understanding the Alphabet Soup of Future Planning
First Steps in Future Planning: Expressing Future Wishes and Financial Planning
ARC Resources in Spanish
Download several resources in Spanish.