Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Parent of an 28-year-old daughter with Angelman syndrome, Robin Wilkerson discuss the importance of community and how to support adults.
Parent of an 28-year-old daughter with Angelman syndrome, Robin Wilkerson discuss the importance of community and how to support adults.
Dr. Ron Thibert, ASF Clinician at Massachusetts General Hospital, discusses everything families need to know about seizures in Angelman syndrome.
Dr. Ron Thibert, ASF Clinician at Massachusetts General Hospital, discusses everything families need to know about seizures in Angelman syndrome.
Fathers discuss everything there is to know about being a dad to a child with Angelman syndrome.
Fathers discuss everything there is to know about being a dad to a child with Angelman syndrome.
In this previously recorded conversation, listen to medical experts answer commonly asked questions about medical care.
In this previously recorded conversation, listen to medical experts answer commonly asked questions about medical care.
In this previously recorded webinar, listen to an “ask all, tell all” session with four Angelman syndrome clinical experts.
In this previously recorded webinar, listen to an “ask all, tell all” session with four Angelman syndrome clinical experts.
Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.
Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.
In this previously recorded conversation, listen to a Q&A moderated by Dr. Elizabeth Jalazo about exciting clinical trial news.
In this previously recorded conversation, listen to a Q&A moderated by Dr. Elizabeth Jalazo about exciting clinical trial news.