Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.
Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.
Christopher Keary, MD discusses anxiety and challenging behaviors at the 2019 ASF Family Conference
Christopher Keary, MD discusses anxiety and challenging behaviors at the 2019 ASF Family Conference
Dr. Christopher Keary, Behavioral Director at the Massachusetts General Hospital Angelman Syndrome Clinic, discusses anxiety and behavioral challenges in individuals with Angelman Syndrome. He provides insights into the evaluation, management, and treatment options for these unique and challenging behaviors.
Dr. Christopher Keary, Behavioral Director at the Massachusetts General Hospital Angelman Syndrome Clinic, discusses anxiety and behavioral challenges in individuals with Angelman Syndrome. He provides insights into the evaluation, management, and treatment options for these unique and challenging behaviors.
Experts discuss common causes of behavior changes and signs of anxiety in individuals with Angelman Syndrome. They explore triggers that can increase anxiety and provide treatment options and interventions to manage these challenges effectively.
Experts discuss common causes of behavior changes and signs of anxiety in individuals with Angelman Syndrome. They explore triggers that can increase anxiety and provide treatment options and interventions to manage these challenges effectively.
Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, will offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.
Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, will offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.
Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.
Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.
Free. With Angelman syndrome comes some unique and challenging behaviors and increasing anxiety. The ASF is happy to offer assistance and information about dealing with and understanding these behaviors, free of charge.
Free. With Angelman syndrome comes some unique and challenging behaviors and increasing anxiety. The ASF is happy to offer assistance and information about dealing with and understanding these behaviors, free of charge.
This series delves into the various social and environmental factors that can influence aggressive behaviors in individuals with Angelman syndrome. It offers insights into understanding these behaviors and provides strategies for caregivers, educators, and healthcare professionals to manage and mitigate aggression effectively. The content is designed to enhance the quality of life for individuals with Angelman syndrome by promoting positive behavioral interventions.
This series delves into the various social and environmental factors that can influence aggressive behaviors in individuals with Angelman syndrome. It offers insights into understanding these behaviors and provides strategies for caregivers, educators, and healthcare professionals to manage and mitigate aggression effectively. The content is designed to enhance the quality of life for individuals with Angelman syndrome by promoting positive behavioral interventions.
Information and links to products for sleep, beds, toilet training and more.
Information and links to products for sleep, beds, toilet training and more.
Features registered dietitian Heidi Pfeifer, RD, from the Angelman Syndrome Clinic at MassGeneral in Boston. She discusses various dietary approaches commonly followed by individuals with Angelman syndrome, including the ketogenic diet, low glycemic index treatment, and modified Atkins diet. Heidi explains how these diets can impact seizure control and overall health, providing insights into their implementation and potential benefits. The presentation aims to inform caregivers and healthcare providers about nutritional strategies to support individuals with Angelman syndrome.
Features registered dietitian Heidi Pfeifer, RD, from the Angelman Syndrome Clinic at MassGeneral in Boston. She discusses various dietary approaches commonly followed by individuals with Angelman syndrome, including the ketogenic diet, low glycemic index treatment, and modified Atkins diet. Heidi explains how these diets can impact seizure control and overall health, providing insights into their implementation and potential benefits. The presentation aims to inform caregivers and healthcare providers about nutritional strategies to support individuals with Angelman syndrome.
