Resources

Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.

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Resources

Behavior | Seizures
Video
ABC's of LGIT

Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.

Sybille Kraft-Bellamy, an LGIT expert and mother to a child with Angelman syndrome, discusses the ABC’s of implementing the LGIT diet during this webinar.

Behavior
Video
Anxiety and Challenging Behavior (2019)

Christopher Keary, MD discusses anxiety and challenging behaviors at the 2019 ASF Family Conference

Christopher Keary, MD discusses anxiety and challenging behaviors at the 2019 ASF Family Conference

Behavior | School/K-12
Service
Applied Behavior Analysis

Free consultation. Michelle Harvey Martin, M.ED. is available to help with Applied Behavior Analysis (ABA) and inclusion in school, IEP goals and meetings with teachers.

Free consultation. Michelle Harvey Martin, M.ED. is available to help with Applied Behavior Analysis (ABA) and inclusion in school, IEP goals and meetings with teachers.

Behavior
Video
Behavior and Anxiety (2021)

Dr. Christopher Keary, Behavioral Director at the Massachusetts General Hospital Angelman Syndrome Clinic, discusses anxiety and behavioral challenges in individuals with Angelman Syndrome. He provides insights into the evaluation, management, and treatment options for these unique and challenging behaviors.

Dr. Christopher Keary, Behavioral Director at the Massachusetts General Hospital Angelman Syndrome Clinic, discusses anxiety and behavioral challenges in individuals with Angelman Syndrome. He provides insights into the evaluation, management, and treatment options for these unique and challenging behaviors.

Behavior
Video
Behavior and Anxiety (2023)

Experts discuss common causes of behavior changes and signs of anxiety in individuals with Angelman Syndrome. They explore triggers that can increase anxiety and provide treatment options and interventions to manage these challenges effectively.

Experts discuss common causes of behavior changes and signs of anxiety in individuals with Angelman Syndrome. They explore triggers that can increase anxiety and provide treatment options and interventions to manage these challenges effectively.

Behavior
Video
Behavior and Anxiety (2024)

Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, will offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.

Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, will offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.

Behavior
Podcast
Behavior and Anxiety (2024)

Christopher Keary, MD, Behavioral Director at the MGH Angelman Syndrome Clinic, and Cesar Ochoa-Lubinoff, MD, MPH, ASF Clinic Director at Cedars-Sinai, offer valuable insights on evaluation, management, and recommended treatment options for unique and challenging behaviors in Angelman syndrome.