Save the Children
Save the Children responds to any emergency that puts at great risk the survival, protection, and well being of significant numbers of children, where addressing the needs and well-being of those children is beyond the indigenous coping capacity, and where Save the Children is able to mobilize the financial and human resources to take urgent action on their behalf.
Catholic Relief Services (CRS – USCC)
Catholic Relief Services aids the poor by first providing direct assistance where needed, then encouraging people to help with their own development. Together, this fosters secure, productive, just communities that enable people to realize their potential.
United Nations Enable
United Nations Enable is the official website of the Secretariat for the Convention on the Rights of Persons with Disabilities (SCRPD) in the Department of Economic and Social Affairs (DESA) at the United Nations Secretariat. The website provides public information on topics related to disability and the work of the United Nations for persons with disabilities.
Association for the Advancement of Assistive Technology in Europe
The AAATE is the interdisciplinary pan-European association devoted to all aspects of assistive technology.
International Angelman Organizations & Contacts
South Africa
Facebook Group: www.facebook.com/groups/1533193256919383
AS in South Africa Facebook group: www.facebook.com/groups/343367025667/
Argentina
Casa Angelman
Email: Maria@casaangelman.org
Facebook: www.facebook.com/casaangelman
Angelman Argentina
Email: sindromeangelman@gmail.com
Facebook: www.facebook.com/angelmanargentina
Australia
Angelman Syndrome Association Australia
Email: info@angelmansyndrome.org
Facebook: www.facebook.com/angelmansyndromeaustralia
Austria
Angelman Verein Osterreich
Email: info@angelman.at
Facebook: www.facebook.com/angelmanverein
Dr. Erwin Hauser
Landesklinikum Mödling
Sr. M. Restituta-Gasse 12
2340 Mödling, Austria
Dr. Michael Freilinger
Allgemeines Krankenhaus Wien
Währinger Gürtel 18-20
1090 Wien, Austria
+43 (0)1 40400 – 32580
Belgium
Belgische Angelman Syndroom Vereniging
Email: post@angelmansyndroom.be Phone: +32 475 75 27 82
Facebook: www.facebook.com/Angelmansyndroom/?fref=nf
Brazil
Associacao Comunidade Sindrome de Angelman
Email: contato@acsa.org.br
Facebook: www.facebook.com/groups/160821717320
Associacao Sindrome de Angelman
Email: contatoangelman@gmail.com
Canada
Canadian Angelman Syndrome Society (CASS)
Email: cass@davincibb.net
Facebook: www.facebook.com/casscharity1993
(Quebec): Angelman Syndrome Foundation of Quebec
Email: info@angelman.ca
Facebook: Facebook – Centre de répit Angelman respite center – Société du syndrome d’Angelman
Chile
Familias Angelman Chile (No National Association)
Email: www.facebook.com/angelmanchile/
China (Hong Kong)
Hong Kong Angelman Syndrome Foundation
Email: info@hkasf.org
Facebook: www.facebook.com/HongKongAngelmanSyndromeFoundation/
Columbia
Fundacion Angelman Columbia
Facebook: https://www.facebook.com/fundacionangelmancolombia
Czech Republic (Slovakia)
Civic Association of Parents and Friends of Children with Angelman Syndrome
Email: angelman@email.cz
Facebook: www.facebook.com/angelman.cz
Denmark
Angelmanforeningen i Danmark
Email: angelmanforeningen@gmail.com
Facebook: www.facebook.com/groups/22095118723
Eastern Europe
Angelman Syndrome Eastern European Group (No National Association)
Facebook: www.facebook.com/groups/341308909405684
Egypt
No National Association
Email: Amira Khalifa – akhalifa@idsc.net.eg
Finland
Suomen Angelman-yhdistys ry
Email: tuija.daivanto@angelman.fi
France
Association Francophone du Syndrome d’Angelman (AFSA)
Email: lara.hermann@angelman-afsa.org
Facebook: www.facebook.com/syndrome.angelman.afsa
Syndrome Angelman France
Facebook: www.facebook.com/Syndrome.Angelman.France
Germany
Angelman e.V.
Email: Bodo.Gerlach@angelman.de | Research, clinical trails and medications: Evelin.Dietrich@angelman.de
Facebook: www.facebook.com/Angelman.Elternverein
Clinic for Adults with AS
Angelman Zentrum Aachen AZA (für Erwachsene)
Pediatric Clinic
Haunersches Kinderspital, iSPZ
Lindwurmstrasse 4
80337 Munich
Christine Makowski (pediatric neurologist)
+49 89 4400 5 6800| Christine.makowski@med.uni-muenchen.de
Cornelia von Hagen (psychologist)
+49 89 3068 2284 | corneliavon.hagen@tum.de
Greece
Angelman-syndrome.gr
Email: Clairy – clairy_k@angelman-syndrome.gr OR info@angelman-syndrome.gr
Guatemala
Angelman Guatemala
Facebook: www.facebook.com/GuateAngels
Hungary
Angelman Alapítvány
Email: angelmanalapitvany@gmail.com
Facebook: https://www.facebook.com/Magyar-Angelman-Szindróma-Alapítvány-Hungarian-Angelman-Syndrome-Foundation-483890115076958
India
Angelman Foundation
Email: info@angelmanfoundation.in
Facebook: www.facebook.com/groups/asindia
Ireland
Angelman Syndrome Ireland
Email: Sarah – admin@angelman.ie
Facebook: www.facebook.com/angelmansyndromeireland
Israel
Israeli Angelman Syndrome Association
Email: Horim.angelman@gmail.com
Facebook: www.facebook.com/angelman.il?fref=ts
Italy
Associazione Angelman
Email: associazioneangelman@gmail.com
Facebook: www.facebook.com/Associazione-Angelman-264454530297881
Sindrome De Angelman – Italia (No National Association)
Facebook: www.facebook.com/groups/17142459959
Japan
Angel No Kai (blog) (No National Association)
Email: masako-m@ck9.so-net.ne.jp
Mexico
Sindrome de Angelman Mexico (No National Association)
Facebook: www.facebook.com/sindromengelmanmex
Netherlands
Angelman Syndroom Nederland
Email: info@angelmansyndroom.nl
Facebook: www.facebook.com/groups/141570629343929
Nina Foundation
Facebook: www.facebook.com/NinaFoundationNL
New Zealand
The Angelman Network
Email: Ursula – angelmannetwork@gmail.com
Facebook: www.facebook.com/groups/104686089609200
Private FB Group: www.facebook.com/theangelmannetwork
Norway
Norsk Forening for Angelmans Syndrom
Facebook: www.facebook.com/Norsk-Forening-for-Angelmans-Syndrom-120579744727860
Philippines
Angelman Syndrome Philippines (No National Association)
Facebook: www.facebook.com/AngelmanPh
Poland
Portugal
Associacao de Sindrome de Angelman de Portugal
Email: Geral@angel.pt
Facebook: www.facebook.com/AngelmanPT
Facebook Group: www.facebook.com/groups/angelman.portugal
Russia
Angelman Syndrome Charitable Foundation
Email: sindromangela@gmail.com | sindromangela@mail.ru
Facebook: https://www.facebook.com/CharitableFoundationAngelmanSyndromeRussia
South Africa
South African Angelman Syndrome Group (No National Association)
Facebook: https://www.facebook.com/groups/1533193256919383/
Spain
Asociación Síndrome de Angelman
Email: Joseba – info@angelman-asa.org
Facebook: https://www.facebook.com/profile.php?id=100069006638719
Sindrome de Angelman
Facebook: www.facebook.com/Sindrome-de-Angelman-114077169428
Dr. Jana Cominguez Carral
Sabadell Hospital
Parc Taulí, 1
08208 Sabadell, Barcellona, Spain
+34 93 723 10 10 ext. 21269
Dr. Roman Enriqueta
Hospital Puerta de Hierro-Majadahonda
Calle Manuel de Falla, 1
28222 Majadahonda, Madrid, Spain
+34 911916000
Sweden
Angelmans Syndrom Föräldrarförening (ASF) (No National Association)
Email: Annette – a.lack@telia.com
Facebook: www.facebook.com/groups/102087956542715
Switzerland
Angelman Verein Schweiz
Email: Melanie – Club@angelman.ch
Facebook: www.facebook.com/AngelmanVereinSchweiz
AngelSuisse
Email: Sarina/Christopher – info@angelsuisse.ch
Facebook: www.facebook.com/groups/AngelSuisse
Tunisia
Facebook: https://www.facebook.com/ATSARTUNISIE
Turkey
Angelman Syndrome Community in Turkey
Facebook Group: www.facebook.com/groups/8766625618
On Facebook | Instagram | Twitter | YouTube
United Kingdom
Angelman Syndrome UK
Email: info@angelmanuk.org
Facebook: www.facebook.com/AngelmanUK/
Uruguay
National Association Angelman Syndrome (No National Association)
Facebook: www.facebook.com/SINDROME-DE-ANGELMAN-EN-URUGUAY-148648096949
Venezuela
Angel Foundation in Venezuela (No National Association)
Facebook: www.facebook.com/Fundaci%C3%B3n-Un-Angel-en-Venezuela-104776379607999
