Medical Information and Emergency Preparedness

Medical Resources

Angelman syndrome can present unique medical issues. This page lists resources developed by medical experts and clinicians at the ASF Angelman Syndrome Clinics. These resources can be helpful in preparing for medical procedures or they can be used by medical professionals to address medical issues. 

Standards of Care for Angelman Syndrome 

Published in 2022, this collaborative project documents common issues that accompany Angelman sydnrome and the most common and established ways of providing care for the issues. 

Prepare your Individual with AS for General Anesthesia

Prepared by anesthesiologists who work with patients with AS, this guide will inform you about what to expect and how to prepare for your individual to undergo anesthesia. 

ASF State Insurance Resource Guide

State-by-state list of insurance  information about government agencies, waivers, contact information and more. 

Webinar: Emergency Medical Considerations for Individuals with AS

Justin Grill, DO, MHA, M.EdHp, discusses issues that involve individuals with AS and their interaction with the emergency department. He discusses strategies to make the best of a visit to the ER and specific intervention information on topics such as trauma, toxicology (poisonings) and fevers.