A message from Amanda Moore, CEO
With our son Jackson’s diagnosis of Angelman syndrome, my husband and I were overwhelmed. We had no idea where to start or how to process the news. It was not until a doctor told us to reach out to the Angleman Syndrome Foundation (ASF) that we truly started to find answers and hope.
With the ASF, you will find a community of people who understand what you are going through. Whether it is connecting you to a local family, educating you at an ASF Family Conference, opening more ASF AS Clinics or just listening, the ASF is here to provide you with whatever you need at any point of your journey.
I would love to hear from you and support you in any way that I can. You can reach me at firstname.lastname@example.org or 800.432.6435. My family and I are honored to serve this community and look forward to meeting you at an ASF Walk or Family Conference!
Families sometimes don’t know where to turn once they’ve received a diagnosis. The good news is that you found the ASF! The ASF has been supporting families for over 25 years while funding the research that has made the biggest strides toward a cure for Angelman syndrome. We and our network of families are here for you.
Start with the steps below.
Stay informed about events in your area and news about the exciting things happening in AS research.
Open our emails when you get them and connect with the ASF and the world wide Angelman community on social media.