New Diagnosis of Angelman Syndrome

Newly Diagnosed

Audrey Angelman

You’re not alone.

The breaking of that awful feeling of isolation is the greatest gift one Angelman family can give to another . . . Those of you who will share your experiences will do it because in the Angelman family, that is what we do. Whatever problems you have to meet, others not only understand, but have found a solution. Whatever road you have traveled, others have traveled before you, so there is no need to travel alone.

– Audrey Angelman

 

What Now? 

Families sometimes don’t know where to turn once they’ve received a diagnosis. It can be overwhelming. The good news is that you found the ASF!  The ASF has been supporting Angelman families for over 25 years. We and our network of families are here for you. 

Start with the steps below.  

1.

Fill out the form below. We will add you to our AS Families email list and send you a packet about AS and information about ways the ASF can help as you begin this journey.

Have a specific question and want to contact the ASF right away? Call 800-432-6435 or email info@angelman.org.

2.

Use this website to become acquainted with Angelman syndrome. When you’re ready,  connect with the Family Resource Team for help on a specific issue, or connect with an ASF Family Champion just to chat – maybe there is one near you!

3.

Stay informed about events in your area and news about the exciting things happening in AS research. 

Open our emails when you get them and connect with the ASF and the world wide Angelman community on social media. 

Newly Diagnosed

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