Planning for the future

Sibling Resources

There is a special relationship between individuals with AS and their siblings.  It can be loving and carefree, and at other times frustrating and overwhelming. Siblings are the future caretakers of their siblings and it’s a very important role that requires support and lots of planning. 

On this page you will find opportunities offered by the ASF for siblings to connect, share experiences, get information and honor their sibling with AS. 

Sibling Resources & Support Groups

Teen sibling and her brother with Angelman syndrome

Adult Siblings Group

This group is for older teens and adult siblings of an adult with AS.  

  • Connect with other adult siblings
  • Learn about resources for your adult sibling with AS
  • Information on future planning

Meetings at at 8:30pm EST

Next meetings: January, March and May of 2022

Rosetti Family

Angel Guardians

This group is for anyone involved in the care of an adult with AS – parents, siblings, neighbors, aunts/uncles.

  • Connect with other caregivers
  • Learn about resources to help in the journey of an adult with AS
  • Hear from guest speakers

Meetings at 8:30pm EST

Tuesday, October 19, 2021 and February, April and June of 2022.

See Adult Resources for more information and to register.

Quinn and Emma

Friends with Wings

This group is for siblings, friends of siblings, cousins, friends, family, classmates, neighbors, nieces/nephews who are 18 and younger. Friends will get a special t-shirt, participate in contests and learn how to have a voice for your friend with Angelman syndrome.

  • Connect with others your age
  • Learn about Angelman syndrome
  • Learn about ways you can support your sibling/friend
  • Spread awareness about AS

Meetings at 7:30pm EST

Thursday, November 11: Pizza Party with Friends who are 5 – 12 years old
Learn about Genetics of AS

Thursday, November 18: Friends With Wings Teen Meeting
Topic: How can ASF help YOU?

Sign up below to receive more information, a welcome packet and a link to meetings. 

Questions can be directed to Kathryn Ely – resources@angelman.org.

Friends with Wings Sign-up