The ASF Adult Taskforce creates and cultivates resources related to adulthood in Angelman syndrome or transitioning to adulthood.
Questions or Requests
If you have a question or idea for an existing or new resource the team could look into, contact Robin Wilkerson email@example.com.
Interested in joining the ASF Adult Taskforce? Complete the form on the ASF Committees page.
ASF Family Champions with Adults
The ASF Family Champions are family members who have volunteered to be available to other families to share their knowledge, experience and lend an ear. There is a group of Champions who are parents to adults with AS. These families are a great resource for questions, concerns and advice on various aspects of adults with AS transitioning and thriving.
See the list on the ASF Family Champions page and reach out to one today.
Recordings of Adult Services Conference Sessions & Webinars
At the 2017 and 2019 ASF Family Conference, there were sessions dedicated to various topics on adulthood in AS and transitioning to adulthood. The ASF has held educational webinars about the topic of Adulthood in AS.
See the Adulthood Playlist to find the list of these recordings.
Support for People who Care for an Adult with AS
The Adult Siblings group and the Angel Guardians group meet a few times a year.
- Connect with other siblings and care givers
- Learn about available resources
- Hear from experts
- Work toward making plans for long-term care for your loved one with AS
See Sibling Resources to learn more.
Resources through The ARC
Start planning now and you can make changes as your child ages and grows. The tool helps you express future wishes, plan for paying for needs, where to live and more.
The Arc offers free webinars on a variety of topics.
See the full list of archived webinars for descriptions and presentation slides.
ARC Resources in Spanish