The ASF Adult Taskforce creates and cultivates resources related to adulthood in Angelman syndrome or transitioning to adulthood.
Questions or Requests
If you have a question or idea for an existing or new resource the team could look into, contact Robin Wilkerson firstname.lastname@example.org.
Interested in joining the ASF Adult Taskforce? Complete the form on the ASF Committees page.
ASF Family Champions with Adults
The ASF Family Champions are family members who have volunteered to be available to other families to share their knowledge, experience and lend an ear. There is a group of Champions who are parents to adults with AS. These families are a great resource for questions, concerns and advice on various aspects of adults with AS transitioning and thriving.
See the list on the ASF Family Champions page and reach out to one today.
Recordings of Adult Services Sessions
At the 2019 ASF Family Conference, there was a day of sessions dedicated to various topics on adulthood in AS and transitioning to adulthood.
Sessions were led by Pat Hornbecker, Kathy Johnson and Todd Robertson, unless otherwise noted.
Landscape of Resources for Adults with Complex Neurodevelopmental Disorders
Sherri Brothers, The ARC of Kentucky
Chipping Away at the Mountain
Housing Options for Adults with AS
Nicole Jorwic, The ARC US
ASF Educational Webinar: Angelman Syndrome in Adulthood
Dr. Ron Thibert and Dr. Anna Larson
September 9, 2014
Resources through The ARC
Start planning now and you can make changes as your child ages and grows. The tool helps you express future wishes, plan for paying for needs, where to live and more.
The Arc offers free webinars on a variety of topics.
See the full list of archived webinars for descriptions and presentation slides.