The ASF Adult Taskforce creates and cultivates resources related to adulthood in Angelman syndrome or transitioning to adulthood.
Questions or Requests
If you have a question or idea for an existing or new resource the team could look into, contact Robin Wilkerson robin.r.wilkerson@gmail.com.
Interested in joining the ASF Adult Taskforce? Complete the form on the ASF Committees page.
Receive Information via Text
Sign up to receive occasional texts for meeting reminders and information about new resources available for adults. Learn how.
Articles, Checklists & Planning Tools
Facility Tour Checklist
Use the tour checklist for tours of day programs and long-term care facilities.
All About Me for Adults
Download the template and complete to describe your adult with AS to others.
ASF Family Champions with Adults
The ASF Family Champions are family members who have volunteered to be available to other families to share their knowledge, experience and lend an ear. There is a group of Champions who are parents to adults with AS. These families are a great resource for questions, concerns and advice on various aspects of adults with AS transitioning and thriving.
See the list on the ASF Family Champions page and reach out to one today.
Recordings of Webinars & Meetings
See the Adulthood Playlist on YouTube for webinars and ASF Conference sessions dedicated to various topics on Adulthood in AS, transitioning to adulthood, planning and more.
Financial Planning
At the 2021 ASF Virtual Family Conference, Mary Anne Ehlert, CFP, from Protected Tomorrows presented a series of videos on financial and long-term planning for special needs futures.
You can find these 6 videos in the Adulthood Playlist or Financial Planning YouTube Playlist.
1. Overview
2. Government Benefits
3. Legal
4. ABLE Act
5. Retiring for Three
6. Financial & Long-term Planning Q&A
Angelman Syndrome in Adulthood
Following a study of adults with Angelman syndrome, Anna Larson, MD and Ron Thibert, DO, MsPH presented the results and findings (2015).
Angel Guardians
The Angel Guardians group meets a few times a year. These meeting are not only for parents and siblings, but also extended family members, neighbors or friends who are involved in the care of an adult with AS.
Watch a video to learn about the program.
- Connect with other care givers
- Learn about available resources
- Hear from experts
Next meeting: TBA
Adult Siblings
The Adult Siblings group meets a few times a year.
- Connect with other siblings
- Learn about available resources
- Hear from experts
- Work toward making plans for long-term care for your sibling with AS
See Sibling Resources for times and registration.
Resources through The ARC
Start planning now and you can make changes as your child ages and grows. The tool helps you express future wishes, plan for paying for needs, where to live and more.
Free Webinars
The Arc offers free webinars on a variety of topics.
Supporting People with I/DD to Identify Appropriate Housing
Plan for the Future with The Arc’s NEW Resources
Grief and Loss in the Lives of People with Intellectual and Developmental Disabilities
Aging and I/DD: Planning for Growing Older
Breaking Up is Hard to Do: Divorce and Families that Include a Child with I/DD
Getting There: Including Transportation in a Future Plan
SibTips Webinar: Understanding the Alphabet Soup of Future Planning
“Being With” People with I/DD Experiencing Grief and Loss
First Steps in Future Planning: Expressing Future Wishes and Financial Planning
See the full list of archived webinars for descriptions and presentation slides.
ARC Resources in Spanish
Download several resources in Spanish.